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	Comments on: 50 Shades of Brown	</title>
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	<link>https://livingwithscleroderma.com/50-shades-of-brown/</link>
	<description>Reflections on the Messy Complexity of Chronicity</description>
	<lastBuildDate>Wed, 07 Dec 2016 17:14:46 +0000</lastBuildDate>
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		<title>
		By: Evelyn Herwitz		</title>
		<link>https://livingwithscleroderma.com/50-shades-of-brown/#comment-56808</link>

		<dc:creator><![CDATA[Evelyn Herwitz]]></dc:creator>
		<pubDate>Wed, 07 Dec 2016 17:14:46 +0000</pubDate>
		<guid isPermaLink="false">http://www.livingwithscleroderma.com/?p=4218#comment-56808</guid>

					<description><![CDATA[In reply to &lt;a href=&quot;https://livingwithscleroderma.com/50-shades-of-brown/#comment-56792&quot;&gt;Cocoa&lt;/a&gt;.

Thank you so much, Cocoa. I&#039;m so glad to know that my words have been helpful to you. There is absolutely so much scary content out there about all the possible complications of scleroderma. I fully empathize with your struggle this summer, even as I am relieved for you that your blood work turned out to be a false positive. I hope you will continue to stay healthy and have a fulfilling time at grad school in Italy--such a beautiful country! Peace.]]></description>
			<content:encoded><![CDATA[<p>In reply to <a href="https://livingwithscleroderma.com/50-shades-of-brown/#comment-56792">Cocoa</a>.</p>
<p>Thank you so much, Cocoa. I&#8217;m so glad to know that my words have been helpful to you. There is absolutely so much scary content out there about all the possible complications of scleroderma. I fully empathize with your struggle this summer, even as I am relieved for you that your blood work turned out to be a false positive. I hope you will continue to stay healthy and have a fulfilling time at grad school in Italy&#8211;such a beautiful country! Peace.</p>
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		<item>
		<title>
		By: Evelyn Herwitz		</title>
		<link>https://livingwithscleroderma.com/50-shades-of-brown/#comment-56807</link>

		<dc:creator><![CDATA[Evelyn Herwitz]]></dc:creator>
		<pubDate>Wed, 07 Dec 2016 17:08:43 +0000</pubDate>
		<guid isPermaLink="false">http://www.livingwithscleroderma.com/?p=4218#comment-56807</guid>

					<description><![CDATA[In reply to &lt;a href=&quot;https://livingwithscleroderma.com/50-shades-of-brown/#comment-56717&quot;&gt;Pat Bizzell&lt;/a&gt;.

Beautiful quote. Thanks, Pat.]]></description>
			<content:encoded><![CDATA[<p>In reply to <a href="https://livingwithscleroderma.com/50-shades-of-brown/#comment-56717">Pat Bizzell</a>.</p>
<p>Beautiful quote. Thanks, Pat.</p>
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			</item>
		<item>
		<title>
		By: Cocoa		</title>
		<link>https://livingwithscleroderma.com/50-shades-of-brown/#comment-56792</link>

		<dc:creator><![CDATA[Cocoa]]></dc:creator>
		<pubDate>Mon, 05 Dec 2016 21:43:43 +0000</pubDate>
		<guid isPermaLink="false">http://www.livingwithscleroderma.com/?p=4218#comment-56792</guid>

					<description><![CDATA[Hi Evelyn- I just wanted to say that your writing has brought me a good deal of peace. I am a 22 year old student who had a scleroderma scare shortly before moving from the USA to Italy for grad school earlier this year. What I thought was routine bloodwork showed that I had a false positive ANA with a pattern indicative of scleroderma, and I wish I could say I handled the possibility with grace, but that&#039;s not how things played out. Instead, I spent my entire summer in a state of constant anxiety and panic over the prospect of it, even after I was assured by several different rheumatologists that the blood test was incorrect. I genuinely thought I wish I had come across this blog during that time as it&#039;s the first thing I&#039;ve read that&#039;s put me at peace with the possibility (and I have done a whole lot of internet reading, which has been largely disastrous for my state of mind). If I ever end up facing something this big and uncontrollable again (which I know I will in some form or another), I can only hope that I&#039;ll be able to come to a place where I can approach it with your perspective. Your resiliency shines through in your writing, and you&#039;re the kind of person that I hope to become as I grow older.]]></description>
			<content:encoded><![CDATA[<p>Hi Evelyn- I just wanted to say that your writing has brought me a good deal of peace. I am a 22 year old student who had a scleroderma scare shortly before moving from the USA to Italy for grad school earlier this year. What I thought was routine bloodwork showed that I had a false positive ANA with a pattern indicative of scleroderma, and I wish I could say I handled the possibility with grace, but that&#8217;s not how things played out. Instead, I spent my entire summer in a state of constant anxiety and panic over the prospect of it, even after I was assured by several different rheumatologists that the blood test was incorrect. I genuinely thought I wish I had come across this blog during that time as it&#8217;s the first thing I&#8217;ve read that&#8217;s put me at peace with the possibility (and I have done a whole lot of internet reading, which has been largely disastrous for my state of mind). If I ever end up facing something this big and uncontrollable again (which I know I will in some form or another), I can only hope that I&#8217;ll be able to come to a place where I can approach it with your perspective. Your resiliency shines through in your writing, and you&#8217;re the kind of person that I hope to become as I grow older.</p>
]]></content:encoded>
		
			</item>
		<item>
		<title>
		By: Pat Bizzell		</title>
		<link>https://livingwithscleroderma.com/50-shades-of-brown/#comment-56717</link>

		<dc:creator><![CDATA[Pat Bizzell]]></dc:creator>
		<pubDate>Tue, 29 Nov 2016 14:49:12 +0000</pubDate>
		<guid isPermaLink="false">http://www.livingwithscleroderma.com/?p=4218#comment-56717</guid>

					<description><![CDATA[I love your close eye for beauty, Ev.  You are so right about the appeal of muted colors. Just yesterday I was thinking of a sonnet by Shakespeare that looks at the same landscape. Although it is more downbeat. I still love its reflection and music:
That time of year thou mayest in me behold
When yellow leaves, or none, or few, do hang
Upon those boughs which shake against the cold,
Bare ruined choirs where late the sweet birds sang . . . 
This thou perceiv&#039;st, which makes thy love more strong,
To love that well which thou must leave ere long.]]></description>
			<content:encoded><![CDATA[<p>I love your close eye for beauty, Ev.  You are so right about the appeal of muted colors. Just yesterday I was thinking of a sonnet by Shakespeare that looks at the same landscape. Although it is more downbeat. I still love its reflection and music:<br />
That time of year thou mayest in me behold<br />
When yellow leaves, or none, or few, do hang<br />
Upon those boughs which shake against the cold,<br />
Bare ruined choirs where late the sweet birds sang . . .<br />
This thou perceiv&#8217;st, which makes thy love more strong,<br />
To love that well which thou must leave ere long.</p>
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