Comments on: A Big Apple Birthday https://livingwithscleroderma.com/a-big-apple-birthday/ Reflections on the Messy Complexity of Chronicity Wed, 26 Apr 2023 16:29:33 +0000 hourly 1 https://wordpress.org/?v=7.0 By: Evelyn Herwitz https://livingwithscleroderma.com/a-big-apple-birthday/#comment-87052 Wed, 26 Apr 2023 16:29:33 +0000 https://livingwithscleroderma.com/?p=9214#comment-87052 In reply to Connie P..

Thanks, Connie!

]]> By: Evelyn Herwitz https://livingwithscleroderma.com/a-big-apple-birthday/#comment-87051 Wed, 26 Apr 2023 16:27:50 +0000 https://livingwithscleroderma.com/?p=9214#comment-87051 In reply to Patricia Osten.

Thanks, Patricia! I’m glad you enjoyed the view. So sorry to hear how scleroderma has lodged in your spine. We each have such unique stories with this disease. Agreed that NYC is not an easy city to navigate with a disability. But I do hope, some fine day soon, that you’re able to figure out a way to get back to the Big Apple, visit with your son, and get the mobility support you need to make it happen with the least pain and most energy possible! And please thank your son for his wonderful work at MoMA . . . much appreciated. Be well.

]]> By: Patricia Osten https://livingwithscleroderma.com/a-big-apple-birthday/#comment-87049 Tue, 25 Apr 2023 18:13:16 +0000 https://livingwithscleroderma.com/?p=9214#comment-87049 What a wonderful birthday treat! I am so envious. NYC has always been my “heart” home, where my son was born and where we lived for some time. Even when we eventually moved to New Haven for my husband’s career, I continued to work in the City and made the daily 5+ hour round trip commute from New Haven to Grand Central. I’m now retired and living in Durham,NC
My son, an artist and theater lighting designer, & his family live in Brooklyn and my son now works at MOMA on special exhibit installations – including this one.
Scleroderma has decided that it likes residing in my spine and has made its home there. After two surgeries (both now labeled “failed back surgery” , I am not able to walk more than a few feet without my cane and NYC is definitely NOT easy to navigate when disabled. The last time I was actually able to visit NYC was in May 2018 so —- Thank You for allowing me to “see” this exhibit.
And Happy Belated Birthday!!

]]> By: Connie P. https://livingwithscleroderma.com/a-big-apple-birthday/#comment-87048 Tue, 25 Apr 2023 17:13:21 +0000 https://livingwithscleroderma.com/?p=9214#comment-87048 Happy Birthday! Wishing you peace and blessings.

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