“In my case, what began as a slow but treacherous course of systemic sclerosis has evolved as the limited version of the disease-”
Ah, yes, now that I read this sentence again, I see what you are saying. I thought you had said “evolved into.” Helps to read carefully.

Hi Sue,
Welcome! I’m glad that you have found my blog helpful. To answer your question, I have limited systemic sclerosis. This version affects mostly extremities with some internal organ involvement. Diffuse systemic sclerosis affects the torso, as well, and can be extremely aggressive. My disease has progressed gradually over decades. Although it has gotten more complex with time, I’ve also had some reversal of skin thickening in my hands, forearms and face. My biggest challenge is chronic digital ulcers. Scleroderma manifests differently in everyone, so my experience is no doubt different from yours, although we have the same technical diagnosis. Hope this helps.

Thanks, Dan. I’m glad that you’ve found some inspiration here. Lupus and scleroderma can actually be confused at disease onset, before symptoms become full blown, so I’m sure you do understand much about all of this from your mother’s experience. One of the lessons I’ve learned from this disease–much as I would have preferred to gain the insight another way!–is to live each day fully. That becomes all the more important, the older I get. Best wishes as you grow into your role as a parent. One of life’s greatest experiences.

Hi Diana,
Sorry to hear you’re having such a tough time right now. There are some excellent sites with a lot of information that you might find helpful. Please check out the Resources section of my blog. Both the Scleroderma Foundation and the Scleroderma Research Foundation have extensive information about the disease, treatments and ongoing research. I’m glad your dogs get you up and about. You’re not alone. Take care.

Glad you enjoyed it!