Uncategorized Archives - Living with Scleroderma https://livingwithscleroderma.com/category/uncategorized/ Reflections on the Messy Complexity of Chronicity Mon, 29 Jun 2026 18:37:52 +0000 en-US hourly 1 https://wordpress.org/?v=7.0.3 31053421 Back to Reality https://livingwithscleroderma.com/back-to-reality/ https://livingwithscleroderma.com/back-to-reality/#comments Tue, 30 Jun 2026 12:00:31 +0000 https://livingwithscleroderma.com/?p=11077

As is always the case when I come back from abroad, it all too soon seems like a distant memory. I am trying to retain the clarity and calm I experienced in Japan. But it’s been a challenging week. Last Thursday I had my regular pulmonary function tests (PFT) at Boston Medical, then saw both […]

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]]> https://livingwithscleroderma.com/back-to-reality/feed/ 2 11077 Blue Mind https://livingwithscleroderma.com/blue-mind/ https://livingwithscleroderma.com/blue-mind/#respond Tue, 25 Mar 2025 12:00:59 +0000 https://livingwithscleroderma.com/?p=10374 Last week, after all the mishegas with my roller-coaster blood pressure was mostly resolved (no, thank goodness, I was not experiencing scleroderma renal crisis, which would be a rare but very serious development at this stage of my disease), Al and I went to Cape Cod for a few days. I had planned this trip […]

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]]> https://livingwithscleroderma.com/blue-mind/feed/ 0 10374 Cooped Up https://livingwithscleroderma.com/cooped-up/ https://livingwithscleroderma.com/cooped-up/#comments Tue, 11 Feb 2025 13:00:03 +0000 https://livingwithscleroderma.com/?p=10319

It’s 30 degrees F here today, but the real feel is about 19. It snowed over the weekend, just over four inches of fluffy white stuff, very pretty for a day and now shrinking into icy clumps. It’s too cold for me to take a walk, and the streets are patched with ice. Ugh. I […]

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]]> https://livingwithscleroderma.com/cooped-up/feed/ 4 10319 Untressing https://livingwithscleroderma.com/untressing/ https://livingwithscleroderma.com/untressing/#comments Tue, 21 Jul 2020 12:00:21 +0000 https://livingwithscleroderma.com/?p=7057

So, I finally took the plunge and got my hair cut. I had been putting this off for months, even after hair salons reopened under Phase I here in Massachusetts. Indeed, I rescheduled at least twice, because I was just too nervous about the pandemic risks. Then the heat wave hit. It’s July, it’s really […]

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]]> https://livingwithscleroderma.com/untressing/feed/ 2 7057 Luminous https://livingwithscleroderma.com/luminous/ https://livingwithscleroderma.com/luminous/#respond Tue, 25 Dec 2018 13:00:31 +0000 https://www.livingwithscleroderma.com/?p=5736 So much tumult this past week, leading up to the holidays. And so, Dear Reader, I offer you this peaceful respite⎯a beautiful stained glass exhibit at the Worcester Art Museum. In the 1890s, when these artworks were created, stained glass windows were designed to uplift the spirit and provide an opportunity for contemplation. We all […]

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