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	<title>
	Comments on: Don&#8217;t Tell Me the Odds	</title>
	<atom:link href="https://livingwithscleroderma.com/dont-tell-me-the-odds/feed/" rel="self" type="application/rss+xml" />
	<link>https://livingwithscleroderma.com/dont-tell-me-the-odds/</link>
	<description>Reflections on the Messy Complexity of Chronicity</description>
	<lastBuildDate>Wed, 30 Jan 2013 20:15:14 +0000</lastBuildDate>
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		<title>
		By: Evelyn Herwitz		</title>
		<link>https://livingwithscleroderma.com/dont-tell-me-the-odds/#comment-633</link>

		<dc:creator><![CDATA[Evelyn Herwitz]]></dc:creator>
		<pubDate>Wed, 30 Jan 2013 20:15:14 +0000</pubDate>
		<guid isPermaLink="false">http://www.livingwithscleroderma.com/?p=1292#comment-633</guid>

					<description><![CDATA[In reply to &lt;a href=&quot;https://livingwithscleroderma.com/dont-tell-me-the-odds/#comment-632&quot;&gt;Basil Rene&lt;/a&gt;.

Thanks for your thoughts, Basil. Yes, not always easy or possible every day, but looking for the positive is crucial to managing any chronic disease.]]></description>
			<content:encoded><![CDATA[<p>In reply to <a href="https://livingwithscleroderma.com/dont-tell-me-the-odds/#comment-632">Basil Rene</a>.</p>
<p>Thanks for your thoughts, Basil. Yes, not always easy or possible every day, but looking for the positive is crucial to managing any chronic disease.</p>
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		<item>
		<title>
		By: Basil Rene		</title>
		<link>https://livingwithscleroderma.com/dont-tell-me-the-odds/#comment-632</link>

		<dc:creator><![CDATA[Basil Rene]]></dc:creator>
		<pubDate>Wed, 30 Jan 2013 19:02:40 +0000</pubDate>
		<guid isPermaLink="false">http://www.livingwithscleroderma.com/?p=1292#comment-632</guid>

					<description><![CDATA[Even though it may be hard, and sometimes physically impossible, starting the day with a smile, if not on your face, then in your heart, can help one to get through the day, and knowing that we are not alone is a huge help. Also remembering when we are at our lowest points that things can only get better. And if they don&#039;t, then they will from that point, or the next. In other word, always staying positive. Well written article. Thank you.]]></description>
			<content:encoded><![CDATA[<p>Even though it may be hard, and sometimes physically impossible, starting the day with a smile, if not on your face, then in your heart, can help one to get through the day, and knowing that we are not alone is a huge help. Also remembering when we are at our lowest points that things can only get better. And if they don&#8217;t, then they will from that point, or the next. In other word, always staying positive. Well written article. Thank you.</p>
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		<item>
		<title>
		By: Evelyn Herwitz		</title>
		<link>https://livingwithscleroderma.com/dont-tell-me-the-odds/#comment-629</link>

		<dc:creator><![CDATA[Evelyn Herwitz]]></dc:creator>
		<pubDate>Tue, 29 Jan 2013 23:01:19 +0000</pubDate>
		<guid isPermaLink="false">http://www.livingwithscleroderma.com/?p=1292#comment-629</guid>

					<description><![CDATA[In reply to &lt;a href=&quot;https://livingwithscleroderma.com/dont-tell-me-the-odds/#comment-627&quot;&gt;debra hord&lt;/a&gt;.

Thanks, Debra! I really appreciate your thoughts. And boy, do I know how it hurts to bang a finger. I hope you are able to stay well and keep fighting. Your encouragement means a lot to me.]]></description>
			<content:encoded><![CDATA[<p>In reply to <a href="https://livingwithscleroderma.com/dont-tell-me-the-odds/#comment-627">debra hord</a>.</p>
<p>Thanks, Debra! I really appreciate your thoughts. And boy, do I know how it hurts to bang a finger. I hope you are able to stay well and keep fighting. Your encouragement means a lot to me.</p>
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		<title>
		By: debra hord		</title>
		<link>https://livingwithscleroderma.com/dont-tell-me-the-odds/#comment-627</link>

		<dc:creator><![CDATA[debra hord]]></dc:creator>
		<pubDate>Tue, 29 Jan 2013 22:39:02 +0000</pubDate>
		<guid isPermaLink="false">http://www.livingwithscleroderma.com/?p=1292#comment-627</guid>

					<description><![CDATA[thanks Evelyn, You are very inspiring to me,I too live with sclerderma every day and have been for about nine years. Everytime  I bang a finger doing normal things and it hurts so abnormally bad I just want to give up. I enjoy your blog because it gives me hope to know that I too have a chance to live with this for a long time. I try to learn what i need to know and try to stay away from the negatives too because this is so individulized that i may not get as bad as some of the people I read about. Hang in there and keep writing, you are an inspiration and you express your self so well. Im not as good as you are and you help me express how I feel.]]></description>
			<content:encoded><![CDATA[<p>thanks Evelyn, You are very inspiring to me,I too live with sclerderma every day and have been for about nine years. Everytime  I bang a finger doing normal things and it hurts so abnormally bad I just want to give up. I enjoy your blog because it gives me hope to know that I too have a chance to live with this for a long time. I try to learn what i need to know and try to stay away from the negatives too because this is so individulized that i may not get as bad as some of the people I read about. Hang in there and keep writing, you are an inspiration and you express your self so well. Im not as good as you are and you help me express how I feel.</p>
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		<item>
		<title>
		By: Evelyn Herwitz		</title>
		<link>https://livingwithscleroderma.com/dont-tell-me-the-odds/#comment-626</link>

		<dc:creator><![CDATA[Evelyn Herwitz]]></dc:creator>
		<pubDate>Tue, 29 Jan 2013 16:58:30 +0000</pubDate>
		<guid isPermaLink="false">http://www.livingwithscleroderma.com/?p=1292#comment-626</guid>

					<description><![CDATA[In reply to &lt;a href=&quot;https://livingwithscleroderma.com/dont-tell-me-the-odds/#comment-623&quot;&gt;Pat Bizzell&lt;/a&gt;.

That&#039;s a great story! It&#039;s so heartening to know, in the midst of so much bad news every day, that such good people exist in the world.]]></description>
			<content:encoded><![CDATA[<p>In reply to <a href="https://livingwithscleroderma.com/dont-tell-me-the-odds/#comment-623">Pat Bizzell</a>.</p>
<p>That&#8217;s a great story! It&#8217;s so heartening to know, in the midst of so much bad news every day, that such good people exist in the world.</p>
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		<item>
		<title>
		By: Evelyn Herwitz		</title>
		<link>https://livingwithscleroderma.com/dont-tell-me-the-odds/#comment-625</link>

		<dc:creator><![CDATA[Evelyn Herwitz]]></dc:creator>
		<pubDate>Tue, 29 Jan 2013 16:57:17 +0000</pubDate>
		<guid isPermaLink="false">http://www.livingwithscleroderma.com/?p=1292#comment-625</guid>

					<description><![CDATA[In reply to &lt;a href=&quot;https://livingwithscleroderma.com/dont-tell-me-the-odds/#comment-622&quot;&gt;Kathy Pulda&lt;/a&gt;.

Thanks, Kathy.]]></description>
			<content:encoded><![CDATA[<p>In reply to <a href="https://livingwithscleroderma.com/dont-tell-me-the-odds/#comment-622">Kathy Pulda</a>.</p>
<p>Thanks, Kathy.</p>
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		<title>
		By: Pat Bizzell		</title>
		<link>https://livingwithscleroderma.com/dont-tell-me-the-odds/#comment-623</link>

		<dc:creator><![CDATA[Pat Bizzell]]></dc:creator>
		<pubDate>Tue, 29 Jan 2013 16:02:53 +0000</pubDate>
		<guid isPermaLink="false">http://www.livingwithscleroderma.com/?p=1292#comment-623</guid>

					<description><![CDATA[&quot;When the worst hits, you learn what you are truly capable of.&quot; These are true words, as I can say from the experience of my own painful hits, though they were emotional and family-related, not health challenges. &quot;No one goes through life unscathed.&quot;

I couldn&#039;t agree more with your wisdom here, Evie, about not dwelling on the possibly catastrophic what-ifs. That way madness lies.

I also want to underscore your point about how we are sustained in catastrophe by loving friends and family, and sometimes even by kind strangers. I just read a very moving story in today&#039;s Globe that provides evidence of this once again. A Milwaukee couple discovered that their eighth child had a disfiguring, brain-damaging birth defect. Just about the only surgeon in the country who could tackle it is at Boston Children&#039;s Hospital, and the surgery was scheduled around Christmastime.  Through the on-line home-schooling network, the family found a family in Northboro--complete strangers, really---who volunteered to move in with relatives and let the entire Milwaukee family take their house for the several weeks they&#039;d need to be in MA, over Christmas.

So far, it looks like the surgery was successful.]]></description>
			<content:encoded><![CDATA[<p>&#8220;When the worst hits, you learn what you are truly capable of.&#8221; These are true words, as I can say from the experience of my own painful hits, though they were emotional and family-related, not health challenges. &#8220;No one goes through life unscathed.&#8221;</p>
<p>I couldn&#8217;t agree more with your wisdom here, Evie, about not dwelling on the possibly catastrophic what-ifs. That way madness lies.</p>
<p>I also want to underscore your point about how we are sustained in catastrophe by loving friends and family, and sometimes even by kind strangers. I just read a very moving story in today&#8217;s Globe that provides evidence of this once again. A Milwaukee couple discovered that their eighth child had a disfiguring, brain-damaging birth defect. Just about the only surgeon in the country who could tackle it is at Boston Children&#8217;s Hospital, and the surgery was scheduled around Christmastime.  Through the on-line home-schooling network, the family found a family in Northboro&#8211;complete strangers, really&#8212;who volunteered to move in with relatives and let the entire Milwaukee family take their house for the several weeks they&#8217;d need to be in MA, over Christmas.</p>
<p>So far, it looks like the surgery was successful.</p>
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		<item>
		<title>
		By: Kathy Pulda		</title>
		<link>https://livingwithscleroderma.com/dont-tell-me-the-odds/#comment-622</link>

		<dc:creator><![CDATA[Kathy Pulda]]></dc:creator>
		<pubDate>Tue, 29 Jan 2013 15:21:25 +0000</pubDate>
		<guid isPermaLink="false">http://www.livingwithscleroderma.com/?p=1292#comment-622</guid>

					<description><![CDATA[Once again a beautifully written, thoughtful , wisdom filled entry.]]></description>
			<content:encoded><![CDATA[<p>Once again a beautifully written, thoughtful , wisdom filled entry.</p>
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