Amanda, thank you for sharing what you’re going through. I’m so sorry to hear about your discomfort. Calcinosis is really mysterious, as my rheumatologist told me. Every one of my docs has said the same thing. No one knows what causes it, and there is as of yet no remedy. However, stay away from Dr. Google! Too much scary stuff online, and this disease is unique to each individual. That’s really important to remember! What you see online and what actually happens in your unique case are quite different.

I hope you have a good rheumatologist and other specialists, given your overlapping diagnoses. That’s a lot to manage. If there is a scleroderma support group in your community, that might be worth a visit, to see if it would be a helpful resource as you deal with all of this. I list some reliable online resources on my blog. Also, Johns Hopkins has good information here: https://www.hopkinsscleroderma.org/scleroderma/. Take care, and good luck with your mammogram.

Thank you, Donna, for your kind words. I’m glad to know that you’ve mostly recovered from your renal crisis. I’m sure that must have been a terrifying experience, and I hope your health continues to strengthen. Feedback like yours is the reason I’ve continued to write this blog all these years. Take care, and be well.