Good to know. Thank you!

The first two drugs I had taken before I got PAH. The last two are newer drugs for PAH. All four drugs open up the blood vessels including my fingers. I am still careful in keeping my hands and body warm but have not had any sores on my fingers since. My PAH has been in control for the last 3 years. I have had scleroderma for 8 years.

Patricia, I hope it helps! Acupuncture can also be a big help. I hope you get some relief! It’s always good to read the clinical research about therapies. Here’s a link to a 2020 NIH review of CBD research for controlling chronic pain: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7204604/. Take care.

Thanks, Janet. I hope your PAH is manageable. That’s really interesting, how those meds have stopped your ulcers. Such difficult tradeoffs. Be well!

So glad to hear that, Linda. I hope you are doing well.

Indeed!
Re masking pain . . . there’s an important distinction to be made between masking pain, as in blocking the sensations without addressing the cause, and managing pain, which is my focus here. I’ve learned from very hard experience with infected ulcers over the decades that you have to get ahead of the pain and stay on top of it with whatever means are safe and effective, or the pain becomes much more intense and harder to control. I agree, pain is the body’s warning system, but once you identify and deal with the cause, the pain requires careful management until the problem resolves. To all readers who struggle with this issue, I hope my experience is helpful.