Comments on: Making Stuff

By: Evelyn Herwitz

Evelyn Herwitz — Mon, 15 Dec 2014 20:39:31 +0000

In reply to Pat.

Hi Pat,

Thanks for your kind words. I’m very glad that my blog is helpful to you. I also hope you are able to find a specialist who knows scleroderma near you. Take a look at the Resources section of the blog. The Scleroderma Foundation on the East Coast and Scleroderma Research Foundation on the West Coast can help you locate someone good. It’s so important to find a rheumatologist who knows the disease and can help you get the latest therapies. Best wishes on your journey. Be well.

By: Pat

Pat — Mon, 15 Dec 2014 09:13:37 +0000

I came across your blog looking for Scleroderma information because my rheumatologist has reason to believe that I need to see someone who specializes in this disease, but I found your blog to be so much more than just a place for information. Not only is it informative, but it truly does flows like music. I really did not know what to expect if my diagnosis is confirmed, but this blog shows that even if I lose use of my hands, anything is manageable with the right tools. Thanks for telling it the way it is!

By: Evelyn Herwitz

Evelyn Herwitz — Sat, 07 Jan 2012 22:46:51 +0000

In reply to Jayne Fisher. Glad to hear I'm in the no-whine zone! One of the real challenges of writing this blog is to find the balance between expressing what I experience in a way that's honest, that doesn't mince the difficult details, and sliding into a big gripe session, which no one wants to read. I expect I'll do some whining at some point, but, I hope, only if it's justified! Thanks for the encouragement, Jayne.

By: Jayne Fisher

Jayne Fisher — Fri, 06 Jan 2012 21:49:30 +0000

It’s amazing how you write about something so debilitating with such beautiful prose. Thank you for this little glimpse of what’s inside of you. There isn’t any part of what you wrote that made you sound like a whiner. I can’t wait for next week.

By: Evelyn Herwitz

Evelyn Herwitz — Wed, 04 Jan 2012 03:01:25 +0000

Thanks, Pat, for your very kind words.

By: Patricia Bizzell

Patricia Bizzell — Wed, 04 Jan 2012 02:41:42 +0000

I’ve been a friend of Evelyn’s for many years and yet I think I never fully realized how many challenges she has faced until reading this blog. It is so generous of her to share her experiences not only with others who cope with chronic diseases but with those of us who need to understand those challenges better. Evie, thank you for your courage.