Comments on: May I Have Your Attention? https://livingwithscleroderma.com/may-i-have-your-attention/ Reflections on the Messy Complexity of Chronicity Tue, 19 Aug 2014 14:46:34 +0000 hourly 1 https://wordpress.org/?v=6.9.4 By: Evelyn Herwitz https://livingwithscleroderma.com/may-i-have-your-attention/#comment-3315 Tue, 19 Aug 2014 14:46:34 +0000 http://www.livingwithscleroderma.com/?p=2744#comment-3315 In reply to Nanci Brosseau.

Thanks, Nancy! One of the best outcomes of the Ice Bucket Challenge is the discussion it’s prompting. I read this article by Seth Godin this morning, very on-point:

http://sethgodin.typepad.com/seths_blog/2014/08/slacktivism.html
He makes several important observations:

1) The Ice Bucket Challenge succeeded in part because it was a grass roots effort, not a corporate strategy.
2) If organizations get too caught up in sizzle, they lose sight of the work that needs to be done for lasting impact.

I don’t have the answer for raising scleroderma awareness, but I do believe, ultimately, we’ll have more success if the broader issue of auto-immune diseases gets addressed, as a joint push for research. Best wishes to your group!

]]> By: Nanci Brosseau https://livingwithscleroderma.com/may-i-have-your-attention/#comment-3314 Tue, 19 Aug 2014 13:08:31 +0000 http://www.livingwithscleroderma.com/?p=2744#comment-3314 Good morning Evelyn. I love your blog and I am actually going to share it with the members of my Scleroderma Support Group here in Minnesota as a discussion point. I was thinking the same thing related to the Ice Bucket Challenge….if only Scleroderma could get even half of the attention…how great would that be? Some day maybe. Thanks for sharing your heart, inspiration and wisdom.

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