Comments on: Refreshment Break https://livingwithscleroderma.com/refreshment-break/ Reflections on the Messy Complexity of Chronicity Tue, 23 Oct 2018 13:43:40 +0000 hourly 1 https://wordpress.org/?v=6.9.4 By: Evelyn Herwitz https://livingwithscleroderma.com/refreshment-break/#comment-72104 Tue, 23 Oct 2018 13:43:40 +0000 http://www.livingwithscleroderma.com/?p=5606#comment-72104 In reply to Connie Sipple.

Thanks, Connie. I hope your digital ulcers are manageable. It is such a complex and chronic aspect of the disease. I am not familiar with LLLT, but I found this feasibility study: https://www.ncbi.nlm.nih.gov/pubmed/29862855. Early research, only demonstrates whether the treatment might work for people with digital ulcers from systemic sclerosis, and not conclusive as a randomized controlled clinical study. But encouraging. Thanks for mentioning this!

]]> By: Connie Sipple https://livingwithscleroderma.com/refreshment-break/#comment-71749 Tue, 16 Oct 2018 14:22:30 +0000 http://www.livingwithscleroderma.com/?p=5606#comment-71749 First of all, i look forward to reading about your life with this disease – I have
learned many things — was diagnosed in 1989 and there was not anyone there
to lessen the fear from that diagnosis
Been blessed – first digtal ulcer was last year – as you know no words to
describe pain – my question to you is – are you familiar with this new
development for ulcers – low level light therapy LLLT ????
ågain, thank you for your blog and wish you continued good health

Sincerely,
Connie Sipple

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