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Reflections on the Messy Complexity of Chronicity

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leaving a legacy

Memorabilia

Evelyn Herwitz · July 16, 2013 · Leave a Comment

A stack of 1960s Mad Magazines, flame and turquoise and mustard Fiestaware, a fake leopard fur coat. A quarter-size violin in a black cardboard case.

Rainbow mounds of beads, dishes of mother-of-pearl belt buckles, baskets of wooden spools, some with thread still wound. Pitchforks, spades, combat helmets, buoys and cowboy boots. A life-size leather horse.

Shelves of Steiff stuffed animals that remind me of the bristle-haired terrier and goldfish I used to have on my bed as a child. A cancelled Pepsi Cola Bottling Company paycheck for 74 dollars and change. A curled black-and-white portrait of a seated, laughing baby, staring brightly into the camera, with a neat cursive inscription on the back: “Helen or me. Keep.”

Al and I wander through dozens of booths on the last day of the July Brimfield Antique Fair, as exhibitors pack up their goods. The afternoon is humid, 90 degrees once again, and we stroll and poke without buying. Occasionally we ask how much, but the price is always too high and we don’t have the energy to bargain.

One table is stacked with milky green glass dishes that match some of our Passover set, passed down from Al’s grandmother to his mother to us. “Are we missing anything?” I ask as I finger a small 10 cent bowl. “No,” he says, rolling his eyes.

Al inquires about the price of a Red Sox pennant, similar to one he has in our basement. “Twenty-five dollars,” says the seller.

I open a wooden trunk that reminds me how I shipped my bulky clothes and desk supplies and a senior prom portrait of my boyfriend and me to college in a black-and-brass trunk that got misplaced. It took nearly a week to locate it. I missed the portrait the most. We broke up that Thanksgiving.

We walk by a drill press, a radial saw, Sears power tools like the ones that filled my father’s basement workshop. There are tables laden with steel chests that contain stacks of shallow drawers. My father used to store his screws and nuts and bolts by size, neatly labeled, this way. I pull open one of the drawers. Empty.

Al sorts through a bin of hardcover books. I imagine the Louise-Nevelson-like sculptures that could be made from keys and doorknobs and letterpress trays. We admire an old leather barber chair.

Sharing a fresh squeezed lemonade, we head back to our car, drained by the heat, glad our energy timed out in synch, proud we resisted buying any of the same kind of junk we don’t need more of, pleased just to point and nudge each other when we discovered something odd or ironic or familiar.

As I drive us back home on the Mass Pike, I wonder: What will I leave behind that might find its way onto a flea market table, picked over, bargained for, set back because the price is too high?

And I wonder: Whatever happened to Helen and her sister, with the beautiful cursive script?

A zinc bathtub, a white lace bridal gown with crystal beading, a mannequin’s arm. A black-maned rocking horse with a red saddle.

A hand-painted Chinese checker board, a vinyl Barbie case, green glass Coca Cola bottles. A tin milk cooler.

Cobalt champagne glasses, a silver flute nested in blue velvet, a neon orange life preserver. A wheel of fortune.

Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com.

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Filed Under: Mind, Sight, Touch Tagged With: Brimfield Antique Fair, leaving a legacy, vacation

Legacy

Evelyn Herwitz · March 27, 2012 · 6 Comments

Last Wednesday, March 21, was Johann Sebastian Bach’s 327th birthday. I know this because I was listening to a J.S. Bach extravaganza on my satellite radio while driving between home and business meetings and doctor’s appointments all day.

I clocked a lot of miles and heard a lot of Bach. Though baroque is not my first choice in classical, this proved a blessing. His music provided the perfect balance to the necessary and supportive but exhausting experience of seeing my rheumatologist at Boston Medical Center. I love all my docs at BMC and here at home—they are wonderful, dedicated physicians. But whenever we talk in great technical detail about symptoms and medication and diagnostics and what may or may not happen next, I’m always drained.

Scleroderma is so complex, involves so much to monitor, that when we discuss my latest issues, much as I probe and want to understand the minutiae, there’s a part of me that doesn’t want to know, that just wants to treat it as the white noise in my life, annoying, in the background, to be ignored.

After my appointment, west-bound on the Mass Pike, as I sorted through our conversation, on came Bach’s Violin Concerto in A Minor. And I remembered playing it. Years ago, in high school. I could still feel the trace of fingering in what’s left of my left hand’s fingertips. As the soloist began the poignant second movement, I recalled the phrasing, how I had loved to bow those notes. Bach’s haunting, wistful melody has been cycling through my mind, since.

So here I am, more that three centuries after Bach composed his masterpiece, and the music speaks to me. And I’m grateful. And awed by the way that a great artist’s creation still resonates, feels fresh, inspires insight, so many years after he set down his pen.

And I wonder, what will I leave behind? I wrestle with this question often. It will be my 58th birthday in a few weeks. I don’t feel old, despite the way my scleroderma gnaws at me. But I do feel that each day is more precious, that I don’t want to waste time any more doing things I don’t want to do. And that I want my writing, my art, to be my main focus.

This is what gets me out of bed in the morning, even on a day like this when I’m still tired after a full night’s sleep and feel like I’m moving through a vat of glue. Writing. Putting one word next to another, one sentence after another, to see where it leads.

Bach described his art this way: “The aim and final end of all music should be none other than the glory of God and the refreshment of the soul.” He reached his lofty goal note by note. I can’t say that I have as clear a vision for my writing, but I know I’ll discover it if I just keep at it, word by word by word.

Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com.

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Filed Under: Hearing, Mind Tagged With: A Minor Violin Concerto, J.S. Bach, kinesthetic memory, leaving a legacy

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About the Writer

When not writing about living fully with chronic health challenges, Evelyn Herwitz helps her marketing clients tell great stories about their good works. She would love to win a MacArthur grant and write fiction all day. Read More…

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I am not a doctor . . .

. . . and don’t play one on TV. While I strive for accuracy based on my 40-plus years of living with scleroderma, none of what I write should be taken as medical advice for your specific condition.

Scleroderma manifests uniquely in each individual. Please seek expert medical care. You’ll find websites with links to medical professionals in Resources.

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