It’s dreary and raining this Sunday afternoon. I’m writing now because Yom Kippur, the Day of Atonement and highest holiday in the Jewish calendar, starts this evening and goes through Monday, which is the day I normally write this blog. It’s a somber day that caps a period of self-reflection. We’re supposed to think about […]

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Labor Day has now passed, alas. The school year has already commenced in our fair city. Once again traffic is heavier on the Mass Pike when I drive into Boston for medical appointments and other events, always a sure sign that vacation season is over. Time for sweaters and jackets and warm pants. I still […]

The post At Summer’s End appeared first on Living with Scleroderma.

It always surprises me this time of year to see leaves already dropping from the trees on our street. I mean, come on, it’s still technically summer here in New England! But the days are growing noticeably short, and less sunlight means less photosynthesis. So, yes, the leaves and other green plants are shifting into […]

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I love the ocean. I wish we lived close enough to walk the beach every day. I find the rhythm of the waves mesmerizing, and the moist sea air really helps my dry eyes, nose, and mouth due to Sjogrens. Recently, I discovered a meditation technique called Ocean Breath, or Ujjayi Pranayama. It basically involves slightly […]

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On Sunday, I got totally out of my comfort zone. I’ve been taking acting classes for several years, now, and over the past sic months, have also joined with some acting friends in an informal group working on scenes. This evolved into reading a play by Selina Fillinger, POTUS: Or, Behind Every Great Dumbass Are […]

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Over the past few months I have endured a series of diagnostic tests to figure out the cause of my chronic diarrhea. The basic hypothesis is that my scleroderma has caused waste to move more slowly through my gut, leading to bacterial overgrowth. But my GI specialist, Dr. H, has been thorough, trying to rule […]

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There’s a word in Japanese for the light that filters through trees: Transliterated as komorebi (kō-mō-reh-bee), it is made up of the Japanese characters for tree, leaking, and sun—meaning, literally, the sunlight that leaks through trees. Komorebi refers to the ever-shifting way that sunlight filters through tree branches and boughs, creating dancing patterns on the […]

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One of the best things about summer is that my finger ulcers tend to heal. For months I was dealing with as many as six bandaged fingers, changing those bandages twice daily. It took at least a half-hour each time I changed dressings and used up a lot of bandages. Now, happily, I’m down to […]

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And now, a detour from scleroderma and related complexities . . . As I shared back in March, my World War I historical novel, Line of Flight, at long last has found a publisher, Köehler Books. Over the past couple of months, I’ve been working with their excellent team, preparing for publication on November 17. […]

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As a child, I used to watch a public TV program about Japanese brush painting, and I learned how to paint the images that the artist demonstrated. It has been a dream for decades to travel to Japan. And so, for two weeks in June, Al and I made that dream come true. Back home […]

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