When I am not writing about living with scleroderma or helping my clients with marketing and communications strategy, I pursue my own writing. Fiction, that is—historical fiction, in particular. Back in 2014, I began working on a novel set in World War I about a mother whose estranged daughter runs off with her beau to […]

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I didn’t realize it at the time, but at the end of December, I wrote my 700th post on this site. I launched Living with Scleroderma on January 3, 2012, and have been posting nearly every week since, with time off for good behavior when on vacation. That’s a lot of posts. While there always […]

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Daylight Savings Time crept up on me this past weekend. Really, is it already time to set the clocks forward an hour? I find this adjustment jarring. I’d rather just let the sun tell me what time it is. According to Harvard Health, we’d all be better off sticking to standard time. But DST has […]

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As I write on Monday afternoon, all is white outside, once again. We are in the midst of a blizzard that has slowed down our corner of the world. Maybe a foot-and-a-half of snow when this is over later today, maybe a little less, maybe a little more—on top of all the snow that hasn’t […]

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Nearly every night for the past 11 days, I have been reveling in the Milan Cortina Winter Olympics. Watching these amazing athletes’ extraordinary feats has been the best antidote to horrible headlines and stress. It has also helped me get through my bout with the flu and the lagging fatigue and residual, annoying cough. I […]

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And so, despite my best efforts, I caught the flu, too. I thought I was being really careful taking care of Al, who quarantined in our home. Wore a mask, brought him meals, the whole bit. He came down with it last Sunday. By mid-week, I was still doing fine, even went to Pilates on […]

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As of midday Monday, as I write, we are immersed in white. Al shoveled a foot-and-a-half of snow for two hours this morning, then fell asleep in his armchair for a while. At some point this afternoon he’ll go back outside and finish clearing our drive. We’re expecting up to another three inches by nightfall. […]

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Every morning, I try to spend a few minutes meditating. I use an app, which is helpful and instructive. My mind wanders as minds do, but I am, over time, getting more adept at slowing down and focusing on my breath. This came in very handy on Monday, when I found myself back in my […]

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For years, our younger daughter has been asking me to document how I bandage my fingers. What if you can’t do it and need help? she asks. What do I need to know? So, last week, while she was visiting for the holidays, we finally got down to the nitty gritty. I reviewed all my dressings, what […]

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And so, on Monday, I got my new crown for my fifth dental implant. It feels odd to have all my teeth once again, always an adjustment after nine months from extraction to finish, living with a space in my mouth. As it was last month when my dentist and his team took impressions to […]

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