Comments on: The Heart of the Matter https://livingwithscleroderma.com/the-heart-of-the-matter/ Reflections on the Messy Complexity of Chronicity Tue, 04 Oct 2022 16:51:27 +0000 hourly 1 https://wordpress.org/?v=6.9.4 By: Evelyn Herwitz https://livingwithscleroderma.com/the-heart-of-the-matter/#comment-85357 Tue, 04 Oct 2022 16:51:27 +0000 https://livingwithscleroderma.com/?p=8734#comment-85357 In reply to Rita.

Rita, thanks for this. I hope your PAH is well controlled by your medication. I was originally diagnosed with Limited Scleroderma, too. I’m glad your experience with the heart catheterization was well handled. I think medical professionals are all really stressed out from the pandemic. It’s been much more noticeable lately, for me. That was definitely a contributing factor to my recent experience. Be well!

]]> By: Rita https://livingwithscleroderma.com/the-heart-of-the-matter/#comment-85356 Tue, 04 Oct 2022 15:42:21 +0000 https://livingwithscleroderma.com/?p=8734#comment-85356 I went through the heart catheterization procedure in December, 2021. The cardiologist diagnosed mild pulmonary hypertension. He and his team were quite attentive to assure my comfort, which made the experience seem far less invasive than it actually is.
Back when I was diagnosed with Limited Scleroderma (formerly known as CREST) it was thought that this type of scleroderma would not involve PAH or ILD.
My pulmonologist opted to prescribe Ambrisentan.
Best wishes on maintaining a good level of health!

]]> By: Evelyn Herwitz https://livingwithscleroderma.com/the-heart-of-the-matter/#comment-85354 Tue, 04 Oct 2022 14:18:33 +0000 https://livingwithscleroderma.com/?p=8734#comment-85354 In reply to Patricia Bizzell.

Thanks, Pat!

]]> By: Patricia Bizzell https://livingwithscleroderma.com/the-heart-of-the-matter/#comment-85351 Tue, 04 Oct 2022 13:20:22 +0000 https://livingwithscleroderma.com/?p=8734#comment-85351 So sorry that you have this new complication to contend with, Evie, but so admiring of your courage and competence in dealing with it. I hope the new treatment regimen continues to help you.

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