Comments on: Tradeoffs https://livingwithscleroderma.com/tradeoffs/ Reflections on the Messy Complexity of Chronicity Tue, 09 Jan 2018 16:06:21 +0000 hourly 1 https://wordpress.org/?v=7.0.4 By: Evelyn Herwitz https://livingwithscleroderma.com/tradeoffs/#comment-64811 Tue, 09 Jan 2018 16:06:21 +0000 http://www.livingwithscleroderma.com/?p=5010#comment-64811 In reply to Karen Schatz.

Hi Karen,
Thank you. I’m glad you found my blog helpful. There are many fellow travelers out there. I encourage you to check out the Inspire online support group moderated by the Scleroderma Foundation to connect with others and learn more: https://www.inspire.com/groups/scleroderma-foundation/. It really helps to know we’re not alone. Take care of yourself, and I hope you come to a point where you feel that you can turn to family and friends for support. This disease is complex, challenging and stressful, but nothing to be ashamed of. And we all need hugs!

]]> By: Karen Schatz https://livingwithscleroderma.com/tradeoffs/#comment-64797 Tue, 09 Jan 2018 01:30:07 +0000 http://www.livingwithscleroderma.com/?p=5010#comment-64797 I just happened upon your blog, but honestly I believe that I was led. I am a 61 yr. old widow of five years. I was diagnosed with CREST and Fibromyalgia in September of 1999. I know I probably had it for at least two years before that. I know no one else that has what I have. My family and friends really don’t know what I have, but it’s getting harder to hide it from them. Thank you for writing, now I know someone. Karen

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