https://livingwithscleroderma.com/until-next-time/ Reflections on the Messy Complexity of Chronicity Tue, 19 Jun 2012 15:08:45 +0000 hourly 1 https://wordpress.org/?v=7.0.4 https://livingwithscleroderma.com/until-next-time/#comment-118 Tue, 19 Jun 2012 15:08:45 +0000 http://www.livingwithscleroderma.com/?p=596#comment-118 Thanks, Pat. I got into the habit of dressing well for doctor’s appointments a long time ago, when I noticed how I not only feel better about myself, but I’m treated with more respect that way. Not that my physicians are ever unprofessional, but I think it helps me avoid sliding into the role of “sick person.” I present as a whole individual and am treated as such.

]]> https://livingwithscleroderma.com/until-next-time/#comment-117 Tue, 19 Jun 2012 14:53:03 +0000 http://www.livingwithscleroderma.com/?p=596#comment-117 This post shows so poignantly what it’s like to deal with a chronic illness. As usual, you show yourself to be admirably adaptive and practical. The note book idea seems essential, I should probably start doing that. In re. bringing your Kindle, yes, I never go to any appointment without something to read and the Kindle nicely enables variety. I also bring layers to guard against air conditioning, of which I am not a big fan anyway, but your idea of dressing spiffily is new to me. I get it. Makes me also think of your earlier post about wanting some remedy for the supposed “puppet” lines on your face (which of course I never noticed). Also reminds me of my mother in the nursing home, visiting its hairdressing salon every week and getting her nails done. That’s brave.

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