Scleroderma Foundation Archives - Living with Scleroderma

It’s Up to Us

Evelyn Herwitz — Tue, 13 Dec 2016 13:00:23 +0000

There’s a lot going on in scleroderma research, particularly regarding efforts to understand the causes of fibrosis—what makes skin get too thick—as well as possible treatments. Just this October, a study published in Arthritis Research & Therapy found that “two approved treatments for pulmonary arterial hypertension— Tracleer (bosentan) and Opsumit (macitentan)—can block a molecular pathway that promotes […]

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Plant a Seed

Evelyn Herwitz — Tue, 30 Jun 2015 12:00:32 +0000

In Australia, the sunflower has become the symbol of scleroderma awareness—because those of us with the disease feel better in the warmth of the sun. I like this idea a lot. Enough, in fact, to consider trying my hand at planting some sunflowers, if not this summer, then next. Yesterday, on June 29, scleroderma associations […]

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Imagine

Evelyn Herwitz — Tue, 07 Apr 2015 12:00:48 +0000

Passover this past weekend was extra special. A few hours before we were scheduled to begin our seder on Friday night, we learned that one of our cousins received the all-clear on her lymphoma, following six months of chemotherapy. There were big hugs all around when she and her family arrived for dinner. A central […]

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May I Have Your Attention?

Evelyn Herwitz — Tue, 19 Aug 2014 12:00:55 +0000

If you spend any time on social media, watching TV or reading the newspaper, by now you’ve undoubtedly heard of the extraordinarily successful “Ice Bucket Challenge” that has raised record-breaking donations for ALS research. It goes like this: You pour a bucket of ice water on your head while someone makes a video of your […]

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Ray of Hope

Evelyn Herwitz — Tue, 07 Jan 2014 13:00:38 +0000

Nothing like starting the new year with some good news about scleroderma research. In my email box last week, I found this item in the Scleroderma Research Foundation’s monthly eNewsletter (12-30-13): Researchers Prevent and Reverse Mice Fibrosis in a Mouse Model of Stiff Skin Syndrome; Study Shows Promise for Scleroderma I read on, heart quickening: […]

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Enough, Already

Evelyn Herwitz — Tue, 02 Jul 2013 12:30:04 +0000

On Monday afternoon, I took Ginger to the vet. This was her semi-annual check-up, time for renewing all her shots. For a nearly 15-year-old Golden, she’s doing great, though getting a bit slow on the up-take, between arthritis, some hearing loss and what I suspect is a touch of senility, as well as the inevitable […]

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