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Reflections on the Messy Complexity of Chronicity

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You are here: Home / Body / Great Escape

Great Escape

Evelyn Herwitz · July 23, 2019 · 9 Comments

As temperatures skyrocketed here and across much of the U.S. this weekend, we decided to flee the 90+ degree heat and 100+ degree heat index and head to our favorite beach escape, Block Island, an hour’s ferry ride from the Rhode Island coast. A wise move. As soon as we parked the car at Point Judith, I breathed in all the good salt air and sea breeze, and exhaled a sigh of relief.

The heat back home was bad enough, the humidity awful, so it was actually a pleasure to pull on a sweater for the windy ferry ride. After a light lunch at our favorite bagel cafe, we walked to the state beach and settled down with rented chairs, umbrella, and our books. Water temp was about 68 degrees F, not bath water, but not icy cold, either. As Al splashed in the surf, I waded up to my knees and was able to stand there for about 15 minutes. This, alone, was a major accomplishment. Usually all I can do is dip my toes for a few seconds to claim that I actually felt the Atlantic for another summer.

After a long walk up the beach and back, watching all the kids surfing on boogie boards and dogs catching balls and young engineers digging sand trenches or building castles, Al turned to me and said, “You coming in?” So I took his hand and allowed him to gently help me get a little further and a little further, up to my hips. Small waves rolled and splashed, and I shivered and jumped.

Years ago, when I was an avid ocean bather, I would just run right in, dive through a wave, then jump and float for as long as I could before I turned blue and my teeth wouldn’t stop chattering. I miss those days, but I’ve had to become extremely cautious about ocean swimming, both due to cold water temps here in New England and because of all my digital ulcers, which could get infected by the sea water.

On this particular hot, hot Sunday, however, with only two ulcers—one a perpetual scab on my left thumb and the other, an exposed piece of calcium lodged in my right thumb—I decided to take a chance. So I dived in. Then shrieked from the cold when I came up for air. But I did it. Two people nearby applauded. Al laughed. It’s been so long since we’ve been able to go into the ocean together. (Last time was three summers ago, in the warm Mediterranean waters along Elba, an island off the Italian coast. That time, I actually got to swim. Al got stung by a jellyfish.)

I didn’t last long. The water was just too cold for me to stay and play. It was refreshing. I remained mostly cool for the rest of the afternoon, aided by a steady sea breeze. By five, I had changed my bandages, we were back in our street clothes and heading up the beach, picking up sea glass on our way to dinner. We nosed around the little shops, caught up with our daughters by phone, and sailed back on the ferry beneath a stunning sunset. Traffic was heavy going home, but it didn’t spoil the day.

And I didn’t read the news. That was the greatest escape of all.

Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com. Please view Privacy Policy here.

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Filed Under: Body, Hearing, Mind, Sight, Smell, Touch Tagged With: finger ulcers, hands, managing chronic disease, Raynaud's, resilience, travel, vacation

Reader Interactions

Comments

  1. Patricia Bizzell says

    July 23, 2019 at 9:52 am

    A day away–such a smart thing to do! And I’m glad you had such a beautiful one.

    Reply
    • Evelyn Herwitz says

      July 29, 2019 at 6:08 pm

      Thanks! Me, too.

      Reply
  2. Joanna says

    July 23, 2019 at 9:07 pm

    I love this. So glad you had a good day! <3

    Reply
    • Evelyn Herwitz says

      July 29, 2019 at 6:07 pm

      Thanks, Joanna!

      Reply
  3. David Powell says

    September 21, 2019 at 10:22 pm

    Please confirm any facts or findings about scoleraderm my neice just passed at 31 with same systoms.

    Reply
    • Evelyn Herwitz says

      September 22, 2019 at 9:36 am

      I’m very sorry for your loss. Please see below.

      Reply
  4. David Powell says

    September 21, 2019 at 10:38 pm

    My neice lived about one year with this pain can someone please explain what could have happened and why so fast my family needs to know we need more answers we have her memorial tuesday sept 24 2019 her name is Stephaine Marie Brown.

    Reply
    • Evelyn Herwitz says

      September 22, 2019 at 9:41 am

      Dear David,
      My sincere condolences to you and your family. Scleroderma appears differently in each individual. From what you write, Stephanie must have had the most virulent form of the disease.
      The best information about scleroderma can be found at either of these two websites:
      Scleroderma Research Foundation: https://srfcure.org/patient-resources/
      Scleroderma Foundation: https://www.scleroderma.org/site/SPageServer/?pagename=patients_home#.XYd5b5NKi6A
      I hope this is helpful as you try to understand what happened.
      Wishing you and your family peace and blessings,
      Evelyn

      Reply
  5. David Powell says

    September 22, 2019 at 10:12 am

    Thank you, you are very kind for responding I will get back in touch after her memorial she left behind four beautiful kids and her husband plus a long list of family and friends, this is hard on everybody with Best Regards, David Powell Warrenville South Carolina

    Reply

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About the Writer

When not writing about living fully with chronic health challenges, Evelyn Herwitz helps her marketing clients tell great stories about their good works. She would love to win a MacArthur grant and write fiction all day. Read More…

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I am not a doctor . . .

. . . and don’t play one on TV. While I strive for accuracy based on my 40-plus years of living with scleroderma, none of what I write should be taken as medical advice for your specific condition.

Scleroderma manifests uniquely in each individual. Please seek expert medical care. You’ll find websites with links to medical professionals in Resources.

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