• Mind
  • Body
  • Sight
  • Hearing
  • Smell
  • Taste
  • Touch
  • Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar

Living with Scleroderma

Reflections on the Messy Complexity of Chronicity

  • Home
  • About
    • Privacy Policy
  • What Is Scleroderma?
  • Resources
  • Show Search
Hide Search

Hearing

Think Warm Thoughts

Evelyn Herwitz · January 10, 2017 · 1 Comment

It’s really cold out. My hands are not happy. Six ulcers on my fingers and a tenacious one on my left ankle tingle and smart. The good news: even though we’re in the teens today, by Wednesday, it’s supposed to go up to the 50s. Welcome to New England.

As I await the warming trend, it’s nice to remember our long New Year’s weekend in St. Petersburg, Florida. Were we really at the beach one week ago? I have the pictures to prove it. So, I share with you, Dear Reader, some highlights of our trip. I hope these bring a little warmth into your day. Enjoy. . . .

At the Dali Museum, which features the works of Spanish surrealist painter Salvador Dali, a special exhibit explored the life and paintings of Frida Kahlo, a 20th century Mexican artist who broke new ground for women painters. I found her life’s story especially moving: she suffered a serious accident at 18 that caused her great pain and many surgeries over her lifetime, but her art enabled her to find meaning in her struggles and to express herself in a universal language.

While Dali’s paintings of melting clocks and dreamscapes are his best known works, I preferred these two examples of his early paintings.

Outside the Dali Museum, visitors tie their entrance wristbands to a bedecked tree. The strips of colored tags luff in the breeze.

The Morean Arts Center includes a collection of glass sculptures by Dale Chihuly. His exuberant use of color and form creates a mesmerizing, whimsical kaleidoscope.

Around the corner, the Center includes a glass blowing workshop. We enjoyed the demonstration, which resulted in a free form glass bowl.

We met ibises in the afternoon . . .

. . . and pelicans at sunset.

St. Pete Beach offered a chance to relax and pretend that winter didn’t exist.

Back home, there is snow on the ground and ice on the sidewalks. It will all be gone by week’s end. I know there’s more on the way. I just need to remember . . . think warm thoughts.

Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com.

Share this:

  • Share
  • Email a link to a friend (Opens in new window) Email
  • Print (Opens in new window) Print
  • Share on Facebook (Opens in new window) Facebook
  • Share on X (Opens in new window) X
  • Share on LinkedIn (Opens in new window) LinkedIn

Filed Under: Body, Hearing, Mind, Sight, Touch Tagged With: finger ulcers, hands, managing chronic disease, mindfulness, Raynaud's, resilience, travel, vacation

Ain’t That a Groove

Evelyn Herwitz · December 27, 2016 · Leave a Comment

lywwpmswdog-hoang-duy-le

Our three Hanukkah candles have burned down for the night. As I write, a pot of lentil soup is simmering on the stove, and James Brown is singing Ain’t That a Groove on our local public radio station.

Do you love me, yes I love you
Do you love me baby, yes I love you

Six days ago, once again, we in the Northern Hemisphere passed through the longest night of the year. Fat, fluffy squirrels chase each other up and down our maple tree. They seem quite hardy, despite the fact that I took down the bird feeder a couple of weeks ago with intent to rig it so they couldn’t keep stealing bird seed by the pawful. Awful. Poor birds. I need to take care of it, as the temperatures drop.

Do you love me, yes I love you, do you
I just gotta, gotta know

Last week I read an analysis of climate patterns that explained how unusually high temperatures in the Arctic are forcing the Jet Stream farther south, trapping colder air over Siberia and sending it our way. We’re in for a bitter winter here in New England. But Al and I are traveling south for New Year’s, escaping chilly air and fog-iced roads for a long, warm, relaxing weekend and a friend’s son’s wedding. Not long enough for all my digital ulcers to heal, but a welcome pause before diving into January.

Hey, ain’t that a groove
Ain’t that a groove let me count

2016 was such a tough year for our nation and the world. I approach 2017 with doubt and trepidation. But then I remind myself: yes, the days are growing longer, once again, minute by minute. It is the way of the Earth turning on its axis. As we travel inexorably along our parabolic path round the Sun, I want to believe that the long arc of progress toward the greater good will prevail. In any case, the radio host just announced that 2016 was the first year that vinyl record purchases outstripped digital downloads. I’m going to assume that’s not fake news.

One for the money, two for the show
Ain’t that a groove now here we go

May 2017 be a year to remember for all the best reasons. See you in two weeks.

Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com.

Image Credit: Hoàng Duy Lê

Share this:

  • Share
  • Email a link to a friend (Opens in new window) Email
  • Print (Opens in new window) Print
  • Share on Facebook (Opens in new window) Facebook
  • Share on X (Opens in new window) X
  • Share on LinkedIn (Opens in new window) LinkedIn

Filed Under: Body, Hearing, Mind, Smell, Touch Tagged With: body-mind balance, finger ulcers, how to stay warm, managing chronic disease, Raynaud's, resilience

Stand Tall

Evelyn Herwitz · December 20, 2016 · Leave a Comment

fa8ugyoy3us-ian-schneider

My posture has been lousy of late. Maybe I’m slouching in front of the computer too much. Or maybe it’s because it’s been too cold out and I’ve been fighting with a recalcitrant ulcer on my left ankle that’s made it harder to take a daily walk. Or maybe it’s just the collective weight of so much discouraging and downright frightening news that feels like a barbell on my shoulders.

Whatever the cause, I need to remind myself to straighten up, stretch my spine and hold up my head. Can’t face the world with a chronic stoop and cower. Nope. Especially not now.

So here’s my antidote, just in time for the holiday weekend: three gifts of inspiration that I share with you. I hope you enjoy these as much as I did when I discovered each one—and that you find yourself walking a little taller, stepping a bit lighter, as a result. And please, pass them along to anyone who could use a little uplift, too.

  1. Artist Christine Sun Kim’s TED Talk: The Enchanting Music of Sign Language
  2. On Being with Krista Tippett: Interview with Vincent Harding, Is America Possible?
  3. Tap v Irish Step Dance (Sorry, couldn’t find the origin of this YouTube video, but it’s a great performance!)

May your holidays be blessed with good company, much laughter, health and peace.

Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com.

Image Credit: Ian Schneider

Share this:

  • Share
  • Email a link to a friend (Opens in new window) Email
  • Print (Opens in new window) Print
  • Share on Facebook (Opens in new window) Facebook
  • Share on X (Opens in new window) X
  • Share on LinkedIn (Opens in new window) LinkedIn

Filed Under: Body, Hearing, Mind, Sight Tagged With: body-mind balance, managing chronic disease

50 Shades of Brown

Evelyn Herwitz · November 29, 2016 · 4 Comments

On Thanksgiving weekend, Al and I took to the woods for an afternoon hike. Most of the trees were barren, their leaves forming a soft, subdued tapestry beneath our feet. Along the trail, there were still hints of green—a tuft of grass, a patch of lichen. But my favorite meditation on a late November walk is to study the subtle browns of autumn’s end: caramel, ginger, cinnamon, umber, burnt sienna, slate-brown cedar, the warm copper of an old penny. Such stunning variations on a theme. And the perfect antidote to tense times.

For you, Dear Reader, here is a sample of what I saw. Relax. Enjoy the view. And be sure to play the short video at the end.

img_2483

img_2474

img_2477

img_2470

img_2481

img_2476

img_2482

(If you can’t see the embedded video, click on this link.)

Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com.

Share this:

  • Share
  • Email a link to a friend (Opens in new window) Email
  • Print (Opens in new window) Print
  • Share on Facebook (Opens in new window) Facebook
  • Share on X (Opens in new window) X
  • Share on LinkedIn (Opens in new window) LinkedIn

Filed Under: Body, Hearing, Mind, Sight, Smell Tagged With: body-mind balance, mindfulness, resilience

Words Matter

Evelyn Herwitz · November 15, 2016 · 2 Comments

beckmann

I am struggling to know what is real.

A red and blue map lays brutally clear the evidence that we are a nation deeply divided. Half of us hear words of hate as a harbinger of authoritarian rule and civil rights destroyed; the other half hear the same words as the not-to-be-taken-seriously polemics of a pragmatic deal maker who will solve all our nations ills.

I await in a state of suspended animation.

Our president-elect appears as stunned as we are that he won. Commenting on nationwide protest marches, he has tweeted that he “loves the fact that the small groups of protesters last night have passion for our great country,” the morning after he described the same as “professional protesters, incited by the media.”

He has said in a Wall Street Journal report on Friday that, after listening to President Obama when they met on Thursday, he will consider retaining provisions of the Affordable Care Act that protect people like me with pre-existing conditions and keep adult children up to age 26 on their parents’ insurance. He has described Secretary Clinton, whom he demonized relentlessly and threatened to jail if he were elected, as “very strong” and “very smart” in a Sunday 60 Minutes interview. He has also repeated his plan to export or incarcerate undocumented immigrants “who are criminal and have criminal records” and build a wall with Mexico that could include “some fencing.” 

He has said many disparaging, divisive words over the course of this brutal, cynical election that he has repeated over and over, others that he has denied or reversed in the blink of an eye. Asked by the Wall Street Journal if he regretted any of his words during the campaign, he said, “No. I won.” Asked by Leslie Stahl on 60 Minutes about his response to the rash of hate crimes and speech spreading across the country, he said “Stop it.” The same day that the interview aired, he named Stephen Bannon, former head of alt-right Breitbart News, as his chief White House strategist. A sample headline from Breitbart, while still under Bannon’s leadership last December: “Why Equality and Diversity Departments Should Only Hire Rich, Straight White Men.”

I don’t know whom to believe.

My world is filled with conversations among friends, in person and in cyberspace, arguing, debating, finger-pointing, grieving, offering empathy and support, urging resistance, counseling calm. Some are profoundly, genuinely scared for their lives. Others express deep gratitude for the support they’ve received from friends and strangers, alike. Still others say to stop whining.

Lists swirl through the media of potential cabinet secretaries and key appointees, including names of oil company executives and climate change deniers. GOP leaders boast of using parliamentary maneuvers to avoid any effort at bipartisanship in pushing through their agenda. The president-elect reassures the president of South Korea that the U.S. will still support her nation, despite his campaign claims questioning that critical strategic alliance.

People leading the protests in cities across the nation criticize President Obama and Secretary Clinton for capitulating in their efforts to promote a smooth transition of power—but buried in an account of the protests in this Sunday’s New York Times is the statement that many of the protest leaders “either did not vote or chose a third party candidate in the general election.”

An essay by Teju Cole in this week’s New York Times Magazine cites Eugène Ionesco’s 1958 play, Rhinoceros, as a chilling reminder of the insidious nature of evil and our willingness to rationalize the collapse of civil society until it is too late.

Kate McKinnon, in a cream-colored pantsuit, plays the piano and sings the late, great Leonard Cohen’s Hallelujah in SNL’s cold open segment that brings me to tears. She ends her finest Hillary impersonation with the words, “I’m not giving up. And neither should you.”

Words matter. My words, yours, what we say to each other, how we listen. What I write.

Of troubled times, author Toni Morrison offered these powerful words more than a decade ago:

“This is precisely the time when artists go to work. There is no time for despair, no place for self-pity, no need for silence, no room for fear. We speak, we write, we do language. That is how civilizations heal.

“I know the world is bruised and bleeding, and though it is important not to ignore its pain, it is also critical to refuse to succumb to its malevolence. Like failure, chaos contains information that can lead to knowledge—even wisdom. Like art.”

Image: “Paris Society” (1925/1931/1947) by Max Beckmann, on display at The Metropolitan Museum of Art’s current exhibit, Max Beckmann in New York. Beckmann was a German painter whose works were banned by the Nazis as “degenerate.”

Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com.

Share this:

  • Share
  • Email a link to a friend (Opens in new window) Email
  • Print (Opens in new window) Print
  • Share on Facebook (Opens in new window) Facebook
  • Share on X (Opens in new window) X
  • Share on LinkedIn (Opens in new window) LinkedIn

Filed Under: Body, Hearing, Mind, Sight Tagged With: body-mind balance, mindfulness, resilience

  • « Go to Previous Page
  • Page 1
  • Interim pages omitted …
  • Page 37
  • Page 38
  • Page 39
  • Page 40
  • Page 41
  • Interim pages omitted …
  • Page 57
  • Go to Next Page »

Primary Sidebar

Subscribe via Email

Enter your email address to subscribe to Living With Scleroderma and receive new posts by email. Subscriptions are free and I never share your address.

About the Writer

When not writing about living fully with chronic health challenges, Evelyn Herwitz helps her marketing clients tell great stories about their good works. She would love to win a MacArthur grant and write fiction all day. Read More…

Blog Archive

Recent Posts

  • Here We Go Again
  • Until Next Year
  • And Now for Something Completely Different
  • 700-plus
  • It’s Never Simple

I am not a doctor . . .

. . . and don’t play one on TV. While I strive for accuracy based on my 40-plus years of living with scleroderma, none of what I write should be taken as medical advice for your specific condition.

Scleroderma manifests uniquely in each individual. Please seek expert medical care. You’ll find websites with links to medical professionals in Resources.

Copyright © 2026 · Daily Dish Pro on Genesis Framework · WordPress · Log in