• Mind
  • Body
  • Sight
  • Hearing
  • Smell
  • Taste
  • Touch
  • Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar

Living with Scleroderma

Reflections on the Messy Complexity of Chronicity

  • Home
  • About
    • Privacy Policy
  • What Is Scleroderma?
  • Resources
  • Show Search
Hide Search

COVID-19

Touchy Choices

Evelyn Herwitz · September 15, 2020 · 2 Comments

I’ve been venturing out a bit more, lately, for various appointments. Wearing a mask in public is both required here in Massachusetts and a no-brainer, for my own health and those around me. But I’m debating whether I always need my second level of protection against Covid: disposable gloves.

I have a stash of gloves that I use for cooking, because I learned long ago that touching raw food with bare hands is an invitation to infected ulcers. So now the question is whether I need to wear them whenever I go out to a place where I may have to purchase something in Covid Time.

Here’s the problem: Inevitably, with credit card terminals, you have to push a button on the screen or use the pen device to do same. I really, really don’t want to touch any surface that’s been touched by so many fingers. Even the most conscientious sales clerk doesn’t sanitize the terminal regularly.

My default up to now has been to go for the extra protection and wear gloves. But sometimes it seems like overkill, and it’s also not great from an environmental standpoint to use all of those disposables that will live forever in a landfill. So this Monday, when I had a meeting that didn’t involve any financial transactions, I skipped the gloves. When I opened the doors to the office building, I pulled my sweater sleeve over my hand so I didn’t have to touch it. I was vigilant about not touching other surfaces. And when I was all through and back in my car, I used hand sanitizer.

Here’s hoping I didn’t miss a step. The whole thought process for a simple trip beyond my home safety zone requires so much concentration, being very mindful of everything I touch to avoid the virus. On the one hand, given my Covid protection protocols, I’m probably at less risk than ever of picking up an infection in one of my digital ulcers. On the other, I’ve still had a few minor infections that I could handle with topical ointment, and one major infection several months ago from having to go gloveless to a medical appointment in a local hospital, per their regulations.

So it goes. I hope you, too, Dear Reader, are doing all you can to keep yourself and your loved ones and anyone else with whom you come in close contact healthy and safe.

Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com. Please view Privacy Policy here.

Image: Emin BAYCAN

Share this:

  • Share
  • Click to email a link to a friend (Opens in new window) Email
  • Click to print (Opens in new window) Print
  • Click to share on Facebook (Opens in new window) Facebook
  • Click to share on X (Opens in new window) X
  • Click to share on LinkedIn (Opens in new window) LinkedIn

Filed Under: Body, Mind, Sight, Touch Tagged With: COVID-19, finger ulcers, hands, managing chronic disease, mindfulness

Just Imagination

Evelyn Herwitz · August 4, 2020 · Leave a Comment

On Monday morning, as I write, 154,944 people have died of COVID-19 in the U.S. By the time you read this, we will have surpassed 155,000 lives lost. At least 4.7 million Americans have been infected, the largest number for any country in the world. Without stricter social distancing and compliance with masking, we could surpass 300,000 deaths by the end of the year.

These numbers are staggering. But in the whirlwind of so much bad news every day, the data can all too easily be dismissed as so much white noise. Unless you’re a heroic front-line medical worker or have lost a loved one to this insidious virus, the daily uptick of infections and deaths is numbing.

Over the weekend, I started reading Albert Camus’s 1947 novel The Plague, a story about a small seaside town in northern Algeria that is swept by a resurgence of the bubonic plague. As a mysterious epidemic of dying rats gives way to a rising number of people perishing, the protagonist, Dr. Rieux, becomes increasingly convinced that this is the same plague that killed 50 million people across Europe, Africa, and Asia in the 14th century. But he struggles to persuade the local authorities to warn the population and impose public health restrictions, such as quarantines.

Trying to wrap his mind around the implications, Rieux recalls what he knows about the Black Death and other plagues throughout human history—that combined, perhaps 30 pandemics had accounted for about a hundred million deaths:

But what are a hundred million deaths? When one has served in a war, one hardly knows what a dead man is, after a while. And since a dead man has no substance unless one has actually seen him dead, a hundred million corpses broadcast through history are no more than a puff of smoke in the imagination.

Remembering the first recorded account of bubonic plague by the sixth century court historian Procopius, who attested that 10,000 citizens of Constantinople died in one day, Rieux cynically tries to think of a way to convey the magnitude of that loss:

Two thousand dead made about five times the audience in a biggish cinema. Yes, that was how it should be done. You should collect the people at the exits of five picture-houses, you should lead them to a city square and make them die in heaps if you wanted to get a clear notion of what it means. Then at least you could add some familiar faces to the anonymous mass.

How do we comprehend the loss of so many Americans so far, with no end in sight?

Here in Massachusetts, Gillette Stadium, home of the New England Patriots, has a maximum seating capacity of nearly 66,000. The Coronavirus has killed enough Americans to fill the stadium two-and-a-third times.

About 52,500 graduate and undergraduate students attended Ohio State University in Columbus in 2018, the nation’s largest university. The Coronavirus has killed more than three times that many individuals.

In its 2019 review of the 25 best small towns in America, Architectural Digest listed Traverse City, Michigan, population 15,000, as Number 1. The Coronavirus has wiped out the equivalent of Traverse City more than 10 times over.

The Boeing 777, the world’s largest twin jet airplane, can hold up to 451 passengers in a two-class set-up. The Coronavirus has killed as many people as if 344 fully occupied 777s had crashed, with no survivors.

According to the U.S. Department of Veterans Affairs, from 1775 to 1991, the total number of American troops killed in battle since our nation’s founding was 651,031 souls. Without changing our behavior nationwide, we may be almost halfway to that total in December. Let that sink in. In less than a year, if Americans continue to argue about whether proven scientific evidence that wearing masks in public, staying six feet apart, and being vigilant about social distancing and mask-wearing indoors can stanch the spread of COVID-19, then we could lose nearly half as many people as all the American soldiers who died on the battlefield over the course of more than two centuries of our nation’s history.

For the love of God, for the sake of everyone, even if it’s inconvenient or too hot or too scratchy, when you’re in public: PLEASE WEAR A MASK.

Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com. Please view Privacy Policy here.

Image: Gillette Stadium, Wikipedia.

Share this:

  • Share
  • Click to email a link to a friend (Opens in new window) Email
  • Click to print (Opens in new window) Print
  • Click to share on Facebook (Opens in new window) Facebook
  • Click to share on X (Opens in new window) X
  • Click to share on LinkedIn (Opens in new window) LinkedIn

Filed Under: Body, Hearing, Mind, Sight, Touch Tagged With: COVID-19, managing chronic disease, resilience

Untressing

Evelyn Herwitz · July 21, 2020 · 2 Comments

So, I finally took the plunge and got my hair cut. I had been putting this off for months, even after hair salons reopened under Phase I here in Massachusetts. Indeed, I rescheduled at least twice, because I was just too nervous about the pandemic risks.

Then the heat wave hit. It’s July, it’s really hot, even for me, and my hair not only resembled Albert Einstein’s, but also was just compounding my sense of overheating. I rarely perspire, but sweat was streaming down my forehead and into my eyes.

I tried a stopgap with hair combs and clips, which worked up to a point. It was kind of fun to be able to play around with my hair again after wearing it short for decades. But not fun enough to make it worthwhile for the long haul that this pandemic surely is.

My salon is in Boston, worth the trip for the talent—my March haircut lasted at least two months before it went haywire. I called ahead to double-check what precautions they were taking and was very pleased that they not only were following the strictest protocols, but also that my stylist wears a face shield over her safety glasses and mask. If she’s being that careful (which she needs to, because she’s at greater risk than I am from so many contacts during the day), then I figured I’d be in good hands. And I knew I could wait another two months before returning.

Even still, I was nervous before leaving the house last Tuesday. What if I was making a huge mistake? What if I got Covid and had a really serious case, given my high-risk status with scleroderma, all for the sake of vanity? I shared this fear with Al that morning, and he was clear that I was neither (a) doing something stupid nor (b) vain. This helped.

I made it into Boston in under an hour (pandemic = no traffic) and found street parking. So far, so good, no need to touch the meter because of my parking app. Most people were wearing masks, as I was, and the sidewalks were not overly crowded, so I could stay six feet or more away from others. I had hoped the salon door would be open, but it wasn’t; I was prepared, and put on a rubber glove to pull it open, so no contact there.

The receptionists were courteous, took my temperature with a forehead scan, then handed me a salon robe. My stylist greeted me soon after and asked if I wanted my hair washed or just spritzed with water for the cut. I was glad to have the option and chose the latter. She sanitized her hands and set to work.

Forty-five minutes later, there was a lot of hair on the floor, and I looked like myself again. She did a wonderful job. I had prepaid online, so there was no need to handle my credit card for the cut or a tip. I sanitized my hands and left feeling great.

Still doubts lingered. For the next few days, I found myself second-guessing any tiny change in my health—a sneeze, a cough, an odd tingling in my tongue (this, I realized, was due to something in a takeout pizza we consumed for dinner that must have been an irritant). But I also was certain that I’d know if I were sick. I am very attuned to my body, and whenever I’m coming down with something, I immediately feel off-kilter. As I write a week after my haircut, I still feel fine, thank goodness.

Getting my hair cut was about more than just wanting to feel cooler in the heat and wanting to look my best, although those were certainly motivating factors. It was also about reclaiming a piece of normal. It was about overcoming my fears of what this pandemic has wrought and taking a carefully calculated risk. It was about supporting my stylist so that she could continue to make ends meet.

My hair is one of the very few things I can control about my appearance, ever since I contracted scleroderma. When it looks good, I feel good, and when I feel good, I have more energy and confidence. And I can be more present and supportive of others. Well worth it.

Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com. Please view Privacy Policy here.

Image: Ugur Peker

Share this:

  • Share
  • Click to email a link to a friend (Opens in new window) Email
  • Click to print (Opens in new window) Print
  • Click to share on Facebook (Opens in new window) Facebook
  • Click to share on X (Opens in new window) X
  • Click to share on LinkedIn (Opens in new window) LinkedIn

Filed Under: Body, Mind, Sight, Touch, Uncategorized Tagged With: body image, body-mind balance, COVID-19, hands, managing chronic disease, mindfulness, resilience

To Stay or Go

Evelyn Herwitz · June 9, 2020 · Leave a Comment

It’s been hard to concentrate. Peaceful protests across the country and around the world that began with the murder of George Floyd and have swelled to encompass deeper and broader issues of racial injustice throughout our society demand attention and engagement. And here I sit, because of Covid, wanting to join in but knowing I can’t afford the risks.

I’ve joined several public protests in the past three-and-a-half years—the first Women’s March; several demonstrations protesting treatment of immigrants, including one in Washington, D.C., in Lafayette Park across from the White House; a local march for gun safety. That’s more protests than I ever did when I was growing up in the sixties, because our parents wouldn’t let me and my sister attend anti-Vietnam War and civil rights demonstrations out of fear for our safety. Now I’m 66 years old, older than they were then, during one of the seminal moments in our nation’s history, and I’m stuck at home.

I talked this over with my cardiologist Monday morning, on a previously scheduled phone appointment. He was quite clear that I need to avoid crowds due to my pulmonary risks with scleroderma and the nature of COVID-19. This advice reinforced my earlier conclusions. So I will stay put.

But my heart is with the peaceful demonstrators. And so I have written to our congresspeople, made donations, talked with family and friends across the political spectrum. I read and follow many news sources to stay informed and aware of a range of views. I listen to various podcasts to gain deeper insights and understanding of the profound injustices at stake. Most of all, I hope to find a way to help from home to support free and fair elections—the essential issue this November.

Each of us has to determine how to respond to this moment. It is my prayer that we will find our way to greater empathy for all, a more compassionate and just society, true public safety, and a willingness to really listen to each other in order to get there.

Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com. Please view Privacy Policy here.

Image: Max Bender

Share this:

  • Share
  • Click to email a link to a friend (Opens in new window) Email
  • Click to print (Opens in new window) Print
  • Click to share on Facebook (Opens in new window) Facebook
  • Click to share on X (Opens in new window) X
  • Click to share on LinkedIn (Opens in new window) LinkedIn

Filed Under: Body, Hearing, Mind, Sight, Touch Tagged With: body-mind balance, COVID-19, managing chronic disease, resilience

The Long Road Ahead

Evelyn Herwitz · June 2, 2020 · 2 Comments

There is so much anguish across America. In my city, on Sunday, the protest about the death of George Floyd in Minneapolis at the hands of police was peaceful, righteous, and culminated in a handshake between the local leader of Black Lives Matter and the white police captain. Together, they led a march from downtown police headquarters back to City Hall, where the demonstration had started.

The hard work remains before us. Systemic racism in our country is on stark display. Even before the turmoil of this past week rivited the nation’s attention (once again) on racial injustice, the pandemic exposed mounting evidence that people of color in this country are at greater risk of life-threatening consequences of COVID-19 than whites. But those risks of poorer health outcomes are not limited to Corona. Our health care system must address racial disparities in access and treatment that tip the scales against people of color.

In a comprehensive 2018 report by Martha Hostetter and Sarah Klein of The Commonwealth Fund, “In Focus: Reducing Racial Disparities in Health Care by Confronting Racism,” the authors state, “A black woman is 22% more likely to die from heart disease than a white woman, 71% more likely to perish from cervical cancer, and 243% more likely to die from pregnancy- or childbirth-related causes.”

The reasons for these discrepancies go far beyond income disparities and associated risks. As the report explains, at the core of racial disparities in health are not only lack of access to quality health care but also lack of equitable treatment—and the long-term impact of stress.

Referring to the data cited above, the report states:

These findings have led some health care researchers to suggest that the experience of being a black woman in America is, itself, a risk factor—and that attention must be paid both to black women’s level of stress throughout their lives and how they are treated by health care professionals. ‘There’s often an assumption in the medical world that racial disparities are due to something genetic, when in fact it might be racism,’ says Neel Shah, M.D., assistant professor of obstetrics, gynecology, and reproductive biology at Harvard Medical School. ‘We’re taught that racism is evil so it’s hard to recognize that in ourselves. But the studies suggest, for example, that we believe black women less when they express symptoms, and we tend to undervalue their pain.’

Poorer health outcomes for people of color are not limited to women. According to the Centers for Disease Control, “African American men suffer disproportionately from high blood pressure, a known risk factor for heart disease and stroke.” I’m summarizing here for the sake of brevity, not to diminish the significance of these statements. This is but the tip of a massive iceberg of the chronic health impact of living in a society where skin color remains a major determinant of personal safety and well-being.

Anyone who lives with an autoimmune disease knows that stress triggers all sorts of unwanted health issues. Chronic stress leads to chronic disease. Our country has a long way to go to address the many racial injustices that are hard-wired into our society. Acknowledging and addressing the cost of racism in our health care system is an essential place to start.

Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com. Please view Privacy Policy here.

Image: munshots

Share this:

  • Share
  • Click to email a link to a friend (Opens in new window) Email
  • Click to print (Opens in new window) Print
  • Click to share on Facebook (Opens in new window) Facebook
  • Click to share on X (Opens in new window) X
  • Click to share on LinkedIn (Opens in new window) LinkedIn

Filed Under: Body, Hearing, Mind, Sight, Touch Tagged With: COVID-19, managing chronic disease, resilience

  • « Go to Previous Page
  • Page 1
  • Interim pages omitted …
  • Page 8
  • Page 9
  • Page 10
  • Page 11
  • Page 12
  • Go to Next Page »

Primary Sidebar

Subscribe via Email

Enter your email address to subscribe to Living With Scleroderma and receive new posts by email. Subscriptions are free and I never share your address.

About the Writer

When not writing about living fully with chronic health challenges, Evelyn Herwitz helps her marketing clients tell great stories about their good works. She would love to win a MacArthur grant and write fiction all day. Read More…

Blog Archive

Recent Posts

  • Tornado Warning
  • A Great Way to Start the Day
  • Making Waves
  • Glad That’s Over
  • A Patch of Calm

I am not a doctor . . .

. . . and don’t play one on TV. While I strive for accuracy based on my 40-plus years of living with scleroderma, none of what I write should be taken as medical advice for your specific condition.

Scleroderma manifests uniquely in each individual. Please seek expert medical care. You’ll find websites with links to medical professionals in Resources.

Copyright © 2025 · Daily Dish Pro on Genesis Framework · WordPress · Log in