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Reflections on the Messy Complexity of Chronicity

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Taste

Frazzled

Evelyn Herwitz · December 20, 2022 · 6 Comments

It’s that time of year when everyone is running around trying to finish up last-minute holiday shopping, fretting over holiday menus and meal prep, and stressing over holiday travel, all while Covid once again seems to be nipping at our heels. (PSA: Please get your Covid bivalent booster and flu shot ASAP if you haven’t already!)

Which is why I was grateful to just sit and finish the Times crossword while our Hanukkah candles burned Sunday night, the first night of the eight-day festival. It was peaceful and our home smelled delicious from the latkes Al was frying. And very good they were, too!

I still have a few small gift errands to run. I’ve also, in recent years, shifted from gifts to charitable donations for family members. I ask what they’d like me to support and then make a donation in their names. Everyone feels good, and there’s no risk of the gift being delayed or late, not fitting, or ending up on a shelf. And it’s easy to do.

Still, the frenzy can be contagious, which can be fun if you like all the stimulation. For my inner introvert, however, peaceful moments watching candles burn is more to my liking.

In the midst of all this, whatever your preferred holiday mode, it’s good to know that the Winter Solstice falls on this Wednesday, December 21. Which means that this Thursday, the days will start getting longer again. The difference may be infinitesimal, but in my mind, realizing we’re making the seasonal turn here in the Northern Hemisphere is always a huge.

And with that, I wish you, Dear Reader, a joyful holiday, whatever you celebrate. Let the light shine in.

Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com. Please view Privacy Policy here.

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Filed Under: Body, Mind, Sight, Smell, Taste Tagged With: body-mind balance, mindfulness, resilience, stress

By the Sea

Evelyn Herwitz · December 13, 2022 · Leave a Comment

Last Friday marked our 38th wedding anniversary, and instead of the usual dinner out (often a challenge around the holidays) or maybe a concert or a show, we decided to escape for the weekend. I love discovering new places to visit, and we both love the ocean, so this time we ventured to the Connecticut shore, to Niantic, a coastal village within the town of East Lyme.

There we discovered a lovely boardwalk (actually, it’s made of concrete) along the shoreline, a park on a bluff overlooking Niantic Bay, and some great restaurants. Niantic Bay links the Niantic River to Long Island Sound, which (I never realized) is an estuary, an essential ecosystem where fresh water mingles with salt water and tides, providing a significant habitat for a bounty of marine creatures and birds. Along the beach we found many scallop shells, native to the bay, and even some sea glass.

Our inn overlooked a marina, which was a plus for Al, who always loves to check out harbors when we’re by the sea. The view was particularly beautiful at night, under a huge full moon. And a big local attraction was the Book Barn, which houses thousands of used books in many, many nooks and crannies. In fact, when I read about Niantic while researching options, that store was the clincher for me. We spent several hours there browsing and, of course, left with more books to read. (Next time, we’ll remember to clear some shelves and bring books to sell to the store, another benefit.)

On Saturday night, we walked a few blocks from the inn to see the annual Niantic Light Parade, a hometown holiday festival of festooned fire engines, local dance troupes in twinkling costumes, the high school marching band, and more. Pure Americana. See the photo of Kermit the Frog, below, along with some other favorite views.

Here’s to more adventures with my dear Al, and many more happy anniversaries to come!

Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com. Please view Privacy Policy here.

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Filed Under: Body, Hearing, Mind, Sight, Smell, Taste, Touch Tagged With: resilience, travel, vacation

Reunion

Evelyn Herwitz · October 11, 2022 · 2 Comments

This past Saturday evening I found myself at an old-time, family-run Italian restaurant not far from where I grew up. Along with several dozen former high school classmates, we were celebrating that milestone event, our 50th reunion. But for the name tags with our senior class photos, most of us would never have recognized each other, now grayer, heavier or thin with wrinkles, stooped. Hellos were immediately followed by squinting at the name tags and an, “Oh, I remember you!” Or not.

None of my high school friends made it, unfortunately, but the evening was pleasant and the conversations up-beat. Everyone I sat with was wise enough to stay away from politics. It was a good reminder that, despite our national discourse feeling like a high school hellscape, most people are considerate adults. We all grew up a long time ago.

The real highlight of my short visit back home, however, was the ever-stunning beauty of the Hudson River Valley. Someone somewhere (I keep thinking it’s Edith Wharton, but can’t find the quote) said that the landscapes of our childhood remain deeply imprinted in our hearts and minds.

So it is for me, growing up near Peekskill, N.Y. I don’t know if I fully appreciated it when I was young, but I was thrilled by the view outside my room at the old motel where our grandparents used to stay when they’d come from Cincinnati to visit—a wide expanse of the Hudson, glittering in the late day sun. Trains that run alongside the river hooted long and low, and even though we lived far from the river itself, that sound was wonderfully evocative of my childhood, beloved music that drifted across hills and woods to my ears, especially at night, especially in summertime when the windows were open.

I sent a picture of the view to my daughters, and my eldest texted back that I should go to Bear Mountain, which had always been a favorite spot when we’d come down to New York for Thanksgiving weekend. On Sunday morning, I checked out of the motel and took her advice, as the state park was only a short drive across the river. The route along the Hudson is winding and narrow, along a rock cliff, and I am no fan of heights, but I just focused on the road ahead as I crossed the iconic Bear Mountain Bridge, with its fieldstone toll house, no longer in operation. It was either that or another fieldstone shelter at Bear Mountain that makes a cameo appearance at the beginning of Jack Kerouac’s On the Road.

Up the squiggly road to the overlook at the mountain’s top, I was followed by a couple of guys on motorcycles, but they were in no rush to overtake me on such a winding route with only large jagged rocks between us and the sharp dropoff. I passed a few intrepid cyclists on the way. At the top, the view did not disappoint, though enough other folks had decided to get there ahead of the weekend holiday crowd that there was no space to linger. I got a better view of the Hudson on my way back down, at a scenic overlook, alongside several tourists with real cameras equipped with telephoto lenses.

From Bear Mountain I drove through Peekskill, which, to my amazement, has barely changed since I was last there, at least 20 years ago. Some of the same mom and pop businesses still remain. The downtown, such as it is, remains dominated by red brick storefronts and the odd, curved, windowless, painted brick building that once housed Genung’s, the local department store where my mom bought me my first bra.

With a little help from my GPS to drive in the right direction out of town, I found my way to the familiar route to our old home. There were a few notable changes: the nunnery is now a condo complex; the community hospital where our mother was treated for the cancer that took her life in 1999 is now owned by New York Presbyterian Hospital.

I turned off the GPS and continued on, past houses that look much as they did when the school bus drove us by, past the decaying one room school house that’s now barely recognizable, past the gas station and general store where we’d walk sometimes to get Bazooka Bubblegum, past what was once a dude ranch for city folks that became a yeshivah while my dad was still living here, to the familiar left-hand turn onto our old road.

The house is barely visible now, hidden behind overgrown shrubbery, its yellow siding that my parents had installed decades ago now dark with mold. There were several cars in the drive and parked in the turnaround out front, so I quickly took a few photos, then drove down to the lake where I’d learned to swim and skate. It was clogged with algae and lily pads, no longer a place that anyone would dip a toe. Boaters were warned to proceed at their own risk. All that’s left of the large weeping willow that was planted when I was a kid is a ragged stump that looks like the remains of a lightening strike. There are weathered picnic tables and a playscape to one side, and the tennis court that used to be reserved for men only after they came home from their New York City train commutes, but the only signs of life, other than the aquatic, was a lot of Canada geese poop. Down the road from the path to the lake was a home with huge blue flags declaring the election victory of the former guy. It was time leave.

On my way out of town, I stopped at an roadside diner that used to be a favorite place for occasional dinners out. There are no longer any jukeboxes at the booths, and the restaurant has expanded well beyond its original blue diner car footprint, but the inside is authentic retro from back in the day, my hearty brunch was great, and it only cost twelve bucks.

Three-plus hours later, I walked in the door and found my husband decorating our pine-bough-covered sukkah, in preparation for the Jewish festival of Sukkot. Later that evening, after we’d finished eating out in the sukkah, I leaned back in my chair and studied the gourds that Al had hung from the lattice roof and smelled the pine boughs and was just grateful to be back home.

Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com. Please view Privacy Policy here.

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Filed Under: Body, Hearing, Mind, Sight, Smell, Taste, Touch Tagged With: mindfulness, resilience, travel, vacation

New Tree, New Year

Evelyn Herwitz · September 27, 2022 · 2 Comments

Friday afternoon, we planted a new tree in our front yard. Ever since our city-owned Norway maple dropped a huge limb across the street this summer, I’ve wanted to make up for the loss. So we are now the proud parents of a persimmon sapling, which will (we hope) bear some tasty fruit in three to four years.

It seems a fitting way to begin the fall season—and a fitting way to mark the Jewish New Year, Rosh Hashanah, which began Sunday evening and continues until sundown tonight.

Planting a tree suggests many metaphors, for life, for abundance, for repairing our world. On a more personal level, I just happen to be a tree lover. The variety of species, alone, never ceases to amaze me or to remind me of the incredible diversity that makes our world so exquisite. Our persimmon has smooth, shiny green leaves that will turn a deep orange later in the season. When mature, it will reach ten to twelve feet in height and crown diameter.

Soon enough it will be whipped by wind and snow, but our landscaper, who specializes in sustainable, edible plantings that are appropriate for our region, assures me that it will sprout stronger roots in response to whatever fall and winter bring. So I will soak it twice a week and undoubtedly worry if the weather turns harsh and watch it adapt and grow.

It’s hard to believe that such a thin stalk will provide shade and food in a few years. But the act of planting a tree is an act of hope. And so, Dear Reader, whenever and however you mark the year’s turn, take heart. And consider planting your own tree.

Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com. Please view Privacy Policy here.

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Filed Under: Body, Mind, Sight, Taste, Touch Tagged With: body-mind balance, mindfulness, resilience

Ooh la la!

Evelyn Herwitz · August 30, 2022 · 2 Comments

At long last, after three years of Covid delays and a bout with Omicron in July, we finally traveled abroad on vacation. This time, we went to Canada, spending a meaningful weekend with family in Toronto and a lovely week in Québec City, which feels like going to Europe without flying across the ocean. I’ve been intrigued by the capital of Québec for years, and it was well worth the wait.

We stayed in the charming Old City and walked and walked up and down the hilly streets, using the funicular only a couple of times at the end of our visit because my feet were giving out. Over a week’s course, we learned a lot about the city’s military history and First Nations. Québec City was built on a high cliff as a fortress and played a major role in the Seven Years War between France and Britain for control of Canada. In a decisive battle in 1759 on the Plains of Abraham, the British won, a turning point that soon led to British control of the territory. This, after the French laid claim to lands that had belonged to First Nation peoples for thousands of years prior. Stories unique to place and time, but all too familiar.

The Old City’s architecture features stone buildings with dormers and metal roofs that are curved at the bottom so snow falls away from the foundation. Churches abound, though we learned that here, as elsewhere, the number of church goers in this predominantly Catholic province are declining. So some churches are being repurposed, including a tasteful renovation of a church into a public library.

We saw wonderful and moving art as well, including a powerful outdoor installation near the port by Ai Weiwei of hundreds of life jackets worn by Syrian refugees, which he collected from the Greek island of Lesbos. Talented street performers juggled and balanced on unicycles in the plaza next to the posh Chateau Frontenac, a landmark hotel. Beyond the Old City’s gates, we toured the Parliament building, which is modeled after the Louvre in Paris and home of Québec’s National Assembly, and the Musée national des beaux-arts du Québec, where we saw an exquisite special exhibit of carvings by Inuit artist Manasie Akpaliapik.

And we traveled up the St. Lawrence by bus to explore the Chute Montmorency, a thundering waterfall that is slightly higher than Niagara Falls, and from there by train to Baie-Saint-Paul, a pastoral town that is home to many artists. Other highlights included a guided tour of the Musée Huron-Wendat and a relaxing cruise on the St. Lawrence. A good thing we walked so much, even as I was exhausted by day’s end, because the food is excellent and the deserts magnifique.

Everywhere we went, we were surrounded by the lyrical sound of spoken French. While I was able to understand about 80 percent of what I read in museum texts, signs, and other materials, the spoken language is very fast and also a dialect, so we had to converse in English. Nonetheless, we were both grateful to our high school French teachers so long ago, that we were able to keep up as well as we did. And, yes, people really do say “ooh la la” instead of “oh wow!” Much sweeter to my ear.

So, here are some of my favorite images from the trip. Profitez-en bien!

Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com. Please view Privacy Policy here.

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Filed Under: Body, Hearing, Mind, Sight, Smell, Taste, Touch Tagged With: resilience, travel, vacation

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About the Writer

When not writing about living fully with chronic health challenges, Evelyn Herwitz helps her marketing clients tell great stories about their good works. She would love to win a MacArthur grant and write fiction all day. Read More…

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I am not a doctor . . .

. . . and don’t play one on TV. While I strive for accuracy based on my 40-plus years of living with scleroderma, none of what I write should be taken as medical advice for your specific condition.

Scleroderma manifests uniquely in each individual. Please seek expert medical care. You’ll find websites with links to medical professionals in Resources.

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