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Reflections on the Messy Complexity of Chronicity

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body-mind balance

Election Season Survival Kit

Evelyn Herwitz · March 1, 2016 · Leave a Comment

12522068044_b73c88f4e9_zToday is Super Tuesday, and here in Massachusetts I’m headed to the polls to cast my ballot in the Presidential Primary. I’ve become a political junkie this election season. So much hangs in the balance for our country.

I do my best to keep on top of political news and analysis, but being a responsible citizen is also raising my blood pressure and keeping me awake at night. This is not good for anyone, whether you have scleroderma or not.

So I’ve discovered a few antidotes to election season stress, which I share with you, Dear Reader, in the hopes that we all can keep our sanity while doing our civic duty, staying informed and voting:

  1. Get the facts. Forget the misinformation, innuendo, insults, lies, Twitter rants and Facebook memes that have characterized this race so far. Find a reliable source of balanced reporting that goes beyond hyperventilating pundits and hysterical headlines. I recently discovered Nate Silver’s 538 website, which provides insightful, nuanced election analysis through a careful examination of polling data. It’s solid reporting. Reading their posts each morning helps me breathe and stay focused.
  2. Exercise. There is nothing like a walk in fresh air to clear my head of election season angst—that, and my Pilates class, or walking the indoor track and riding the bike at the gym. I can’t recommend it highly enough, whatever your favorite form of exercise. Just do it.
  3. Listen to great music. When I feel like I’m getting too wound up or depressed about the latest outrageous political headline, I immerse in wonderful music. Here’s one of my favorites, Gershwin’s Cuban Overture, performed by Lorin Maazel and the Cleveland Symphony (click on the link if you can’t see the embedded video):
  4. Watch Fred Astaire dance with Ginger Rogers. Simply the best, guaranteed to make you smile, regardless of what’s weighing on your mind, political or otherwise. Here’s a number from their 1936 classic, Swing Time, a great tap dance to “Start All Over Again” (again, just click on the link if you can’t see the video here):
  5. Look for the good in others. Despite all the darkness and truly depressing news we hear every day, and all of the candidates’ dire predictions about the future if we don’t heed their warnings, there are still good people out there doing good things. Keep perspective with a dose of positive stories from sites like David Freudberg’s Humankind.

None of this is to say we shouldn’t take this presidential election seriously. This is certainly the most important presidential race of my lifetime, one that will define the direction of this country for years to come. It’s never been more crucial to be an informed citizen and participate in the electoral process.

But it’s also essential not to get swept up in all the Sturm und Drang—especially when you’re managing a chronic disease like scleroderma that’s exacerbated by stress.

Hope this helps. And God bless America. Please.

Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com.

Image Credit: DonkeyHotey via Flickr Creative Commons

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Filed Under: Body, Hearing, Mind, Sight Tagged With: body-mind balance, managing chronic disease, mindfulness, stress

Mouse Wars II: The Empire Strikes Back

Evelyn Herwitz · February 23, 2016 · Leave a Comment

It’s been a month since we first confronted a mice invasion in our home—during a bright full moon. Well, the moon is full again, and the problem we thought we’d solved weeks ago turns out to be a lot more intransigent than I had hoped.

4 muisjes op kaasI hate the idea of killing mice. It’s not in my nature. We never had an issue while our dear old Golden Retriever, Ginger, was alive. But Ginger died just over a year ago, and it seems that the mice are having a veritable field day somewhere inside the walls or under the floorboards of our house.

This all started when we were careless enough to leave a bag of birdseed unattended in our garage. Mice discovered it and took it as an invitation to settle in. When I finally sealed off the bag in a plastic bin, they sought refuge inside our warm and cozy home. Under a full moon, they began zipping all over our first floor.

Given that I have scleroderma and am very susceptible to infection, we decided to set traps and stop the invasion. We caught a half dozen mice. Things settled down, and I thought the mice had moved on.

No such luck. When the temperatures dropped a couple of weekends ago to -19º F, all of a sudden we discovered that we were not alone. A mouse popped up in Emily’s room while she was home visiting, to her alarm. We set a trap. No takers.

I set a couple more traps. Nothing. But the mice were leaving their calling cards all over the place—behind the kitchen garbage can, in back of a pile of books near Al’s armchair, in the upstairs bathroom, you name it. One recent morning, Al found a foil-covered peppermint patty that had been dragged from the kitchen table to the floor, the wrapper nibbled to shreds and part of the chocolate chomped away. I’ve got to hand it to them—they know the meaning of teamwork.

Last Friday I went to the hardware store and bought some bait traps. But I didn’t have the heart to set them. Maybe the mice would go away! Maybe they’d realize there really wasn’t any food lying around (no more peppermint patties, for certain) and it was time to move on!

Then I walked into the kitchen Saturday night and saw a mouse darting from the top of the computer cable box (no doubt warming itself). On Sunday, I was working at the kitchen table, too absorbed in writing my novel to get up and check out the slight rustling noise in the dining room. Later, we found a couple of calling cards on the dining room table. Ugh.

So, Monday morning I finally called the pest control professionals. Here’s what I learned: The reason we didn’t catch any more mice had nothing to do with how many mice were left. Mice are smart and they’d figured out that the traps were deadly. And the fact that we’ve found mouse droppings upstairs and down means we have a big problem on our hands.

A mouse expert is coming first thing Friday morning to do an inspection, set the bait and close off any small mouse holes. I wish we didn’t have to go this route, but from the research I’ve done, there really isn’t an alternative when it gets to this point. A mouse’s gestation period is about 20 days. We’ve gone through a few cycles, easily, since all this started, for who knows how many females.

Mice have been on this planet as long as humans. They will probably outlast us, in the end. They make cute pets. They have helped scientists discover much about animal and human behavior. They are entertaining characters in children’s books and cartoons. But they are not welcome to colonize our home.

Here’s hoping, next full moon, I’ll have nothing more to report. May the Force be with us.

Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com.

Image Credit: ChIandra4U

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Filed Under: Body, Hearing, Mind, Sight Tagged With: anxiety, body-mind balance, infections, managing chronic disease

Ready, Set, Spring

Evelyn Herwitz · February 2, 2016 · 2 Comments

Just as we were getting used to Arctic temperatures (to the extent one ever does), the weather is now in the ’50s for a few days here in Central Massachusetts. I’m not complaining. I’ll take every warm day (relatively speaking) that I can. And even if Punxatawney Phil sees his shadow today, I will ignore his prediction of six more weeks of winter.

To that end, I share with you my favorite arrangements from the Worcester Art Museum‘s annual Flora in Winter exhibit this past weekend. Who says spring isn’t just around the corner?

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Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com.

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Filed Under: Body, Mind, Sight Tagged With: body-mind balance, resilience

If I Had a Billion Dollars

Evelyn Herwitz · January 12, 2016 · 2 Comments

Al and I were sitting at the dinner table Sunday night, finishing our meal of salad plus macaroni-cheese-and-tomato-sauce casserole. “The Power Ball is worth over a billion dollars,” he said ($1.4 billion, to be exact—but who’s counting).

rainbow-1393626-639x391“Really?” I said. “What would you do with a billion dollars? I mean, whatever was left after taxes?” (Even if it was less than half, that would still be a whole lot of money.)

We agreed that our first priority would be to pay off all debts—our mortgage, the equity line, the girls’ college and grad school loans. We’d make sure their futures were financially secure. And we agreed that our second priority would be to set up a charitable foundation.

“Who would you give the money to?” Al asked.

I began enumerating—certainly I’d donate to scleroderma research, also our favorite charities and our synagogue. I’d give a lot of money to climate change research, like how to desalinate sea water, alternative methods of farming during droughts, better ways to control coastal flooding. I’d fund interfaith dialogue and Middle East peace initiatives. Grants to fledgling artists and writers. For starters.

“What else?” he asked.

“Well, I’d fix up the house, do all the projects we’ve put off. Maybe I’d want to sell it and downsize.”

“Downsize? With all that money?”

“Sure. Then we could buy vacation places around the world. Except they’d be a lot of upkeep.” (So much for downsizing.)

“It wouldn’t matter,” said Al, caught up in the game. “We’d have enough to pay for a home on Block Island.”

“Okay, then we could also have an apartment in Tel Aviv and a place on the French Riviera. And I’d want to travel. First class. Go to Antarctica.” (I could certainly afford to buy whatever gear I needed to stay warm, there or here, for that matter.)

Al smiled. He began to clear the dishes.

I imagined buying custom-made shoes for my hard-to-please feet and any clothes I wanted.

“You could get a personal trainer,” he said, picking up my empty dinner plate.

“Yeah,” I said, “and I’d want to put aside enough money so we’d be able to afford in-home care, 24/7, for when we get older, so we’d never have to live in a nursing home.” (Might as well be a little practical about the future with all that imaginary money. Certainly no more worries about medical expenses!)

What about work? We agreed we’d have our hands full managing our foundation, even if we hired staff to run it for us. We’d also be busy traveling. The rest of the time, I’d want to write my novel.

“Better buy some tickets,” I told him. (I can dream, can’t I?)

Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com.

Image Credit: Yarik Mishin

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Filed Under: Body, Hearing, Mind Tagged With: body-mind balance, managing chronic disease, resilience, scleroderma research, travel

Darkness Into Light

Evelyn Herwitz · December 22, 2015 · Leave a Comment

Just before midnight last night, the Earth reached the point in its annual orbit when the North Pole tilted the farthest distance away from our Sun—23.5 degrees, to be exact. For those of us in the Northern Hemisphere, that means today, December 22, brings the shortest day’s worth of daylight of the year. Starting tomorrow, daylight grows incrementally longer.

Tower HillI’m not alone in my feeling of relief every time we pass the Winter Solstice. People have celebrated the arrival of the “new sun” for millennia. Usually Hanukkah lands close enough to this day that, by the time we light the eighth candle, I feel like the long descent into darkness is over; this year, I had to wait another eight days, and it seemed like forever.

Of course, here in New England, just because the days are now officially getting longer doesn’t mean they will get warmer. Not by a long shot. Even though December has been exceptionally mild—heading toward the ‘60s on Christmas Day—come January, we will undoubtedly have colder weather. Last year’s mild December tricked everyone when we were socked with a brutally cold winter and more snow in Worcester than any other city in the country.

I write this, of course, because winter is just really hard on my Raynaud’s. I saw my rheumatologist last week, and we were joking that the only people who are happy about the warm weather here are people like me. Everyone else is wishing for some seasonal temperatures and at least enough snow to transform the landscape without making roads hazardous. Even the ski resorts can’t make snow because it’s just been too warm.

So far, the National Oceanic and Atmospheric Administration is predicting a milder winter in these parts. I have yet to have my snow tires put on my Prius. Usually I do this just after Thanksgiving. I know I should take care of this soon, before year’s end. But there’s been no incentive.

I’m not complaining. I am reveling in this weather for as long as it lasts. And I’m enjoying the psychological boost of knowing that there will be more daylight tomorrow, and the day after that, and the day after that.

Meanwhile, I’m looking for ways to brighten the darkness. Over the weekend, Al and I went to Tower Hill Botanic Garden to enjoy tropical plants in the Orangerie and Limonaia, the festive seasonal decorations, a performance of Renaissance and Baroque music celebrating the Winter Solstice and, best of all, the gardens illuminated at night by thousands of jewel-toned lights. I leave you with this view, to brighten your own dark nights as we await the return of longer days.

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Evelyn Herwitz blogs weekly about living fully with chronic disease, the inside of baseballs, turtles and frogs, J.S. Bach, the meaning of life and whatever else she happens to be thinking about at livingwithscleroderma.com.

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Filed Under: Body, Mind, Sight, Touch Tagged With: body-mind balance, managing chronic disease, resilience

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About the Writer

When not writing about living fully with chronic health challenges, Evelyn Herwitz helps her marketing clients tell great stories about their good works. She would love to win a MacArthur grant and write fiction all day. Read More…

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I am not a doctor . . .

. . . and don’t play one on TV. While I strive for accuracy based on my 40-plus years of living with scleroderma, none of what I write should be taken as medical advice for your specific condition.

Scleroderma manifests uniquely in each individual. Please seek expert medical care. You’ll find websites with links to medical professionals in Resources.

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